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In this Issue
Winter 2004
The CFIDS Chronicle

The Chronicle is mailed quarterly to members of The CFIDS Association of America. For information on how to join the Association, click here.

Chronicle Online.  Issues of The CFIDS Chronicle are now available online in the easy-to-read PDF format.

Features

Sleep and CFIDS
By Vicki Walker and the National Sleep Foundation

Big Picture of CFIDS Emerges
By Vicki Walker

Chronicle Q&A: Mark VanNess, PhD, and Chris Snell, PhD: Working to Understand Why Activity Causes Relapse in CFIDS
By Vicki Walker 

Snapshots of CFIDS

Whatever Doesn't Kill You Makes You Stranger
By Kate Franklin

Preparedness
By Liz Burlingame

First Winter of My Illness
By Mary Anne Michell


Complementary Therapies: Deficiencies You Can Deal With
By Patti Schmidt

 

Interest Areas

Living With CFIDS: CFIDS and the Muse
By Steve Sorensen
 


Departments

Readers' Forum

DC Dispatch

CFIDS News

Research News

Association News

One to One

Book Reviews

Bulletin Board


Message to members
What if a simple case of the flu lasted for years?

Anthrax. West Nile Virus. SARS. Flu. Health topics that ignite fear and panic. Newspaper headlines and popular TV shows fuel the public’s worries about being healthy one minute and seriously ill the next. However, anthrax poisoning, West Nile and SARS are relatively rare and somewhat exotic, making it easier to feel comfortably distant and safe from their effects. But flu is everywhere; it even has its own season.

An average of 114,000 Americans are hospitalized and 36,000 die every year from the flu. Experts warn that we’re overdue for a flu pandemic, in which a new strain emerges to which no one is immune. In 1918 a flu pandemic took 20 million lives worldwide. Public health officials admit there is no game plan to respond if a new strain evolved today.

This year’s particularly virulent strain, an unprecedented shortage of vaccine and media focus on children’s deaths have intensified public concern about flu. Nobody wants to get it. Nobody has “time” to be sick for a week or two. Imagine how people would panic if this year’s strain caused an illness that lasted for months or years?

Yet, isn’t that what CFIDS is, in its simplest form? A vicious flu that doesn’t subside, that wreaks havoc on most major body systems and upsets subtle chemical pathways. A flu that turns a couple days of sick leave into short-term, then long-term disability. A flu that saps stamina, intellect, bank accounts and hope. A flu that steals lives rather than ending them. A pandemic the experts haven’t recognized yet.

In this new year we are testing novel ways to get the public’s attention on CFIDS. We’re focusing more resources than ever on educating health care providers about diagnosing and managing CFIDS. We are intensifying efforts to expand CFIDS research

and strengthen public health measures. In 2004 we intend to make important progress on all these fronts. We hope you will continue to support The CFIDS Association in these critical efforts.

K. Kimberly Kenney