In this Issue
August 2007
CFIDSLink Electronic Newsletter

CFIDSLink is e-mailed monthly free of charge to all those interested. To sign up for the electronic newsletter visit http://www.cfids.org/subscribe.asp.

In this Issue

• From the Desk of Kim McCleary
• Research Matters
      Genes Linked to Postinfective CFS
      The Infection Connection    
• August is Prime Time to Speak Out
• Advocacy Webinar August 7
• CFS in New York Times and on Fox TV Program
• Organizations Making History: Part II
• Photo Exhibit Summer and Fall Venues
• CFS Seminar Coming to Denver
• Personal Stories: Life University

From the Desk of Kim McCleary
Summer is a time for taking breaks but also a time to make the most of special opportunities the season brings. Association President & CEO Kim McCleary shares some interesting opportunities and events in store this summer for those who care about CFS.
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Research Matters

Genes Linked to Postinfective CFS
A study published last month by Andrew Lloyd and colleagues links 35 specific genes to a postinfective group of CFS patients. The study compared the genes of subjects who recovered promptly from Epstein-Barr virus (EBV) infection to those who went on to develop CFS.
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The Infection Connection
This spring, Cort Johnson reported on results from an earlier phase of Dr. Lloyd’s research project examining the relationship between several infectious agents, postinfective fatigue and CFS. Though the project has additional studies planned, what they’ve found so far (including results from the gene study mentioned above) sheds light on some of the mechanisms that may be at work in postinfective CFS.
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August is Prime Time to Speak Out
Between August 6 and September 4, members of Congress are back in their states and districts so they can meet with their constituents. The two best ways to get some “face time” with your elected officials is through Town Hall meetings and personal meetings in their local offices. Here are some pointers about ways to do this.
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Advocacy Webinar August 7
Join us August 7 at 3:30pm for a free webinar about connecting with your member of Congress close to home. Register for this free on-line event at https://www.gotomeeting.com/register/128552820

CFS in New York Times and on Fox TV Program
CFS continues to make national headlines. Here are the two latest examples of how the public awareness campaign is “Spark!ing” attention across the country.
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Organizations Making History: Part II
In this article, the Association pays tribute to four more organizations making unique contributions in the fight against CFS and related disorders. Learn more about how the Rocky Mountain CFIDS/FMS Association, New Jersey CFS Association, the YPWC youth alliance of the mid-1990s and the current team of CFS researchers in Japan have shaped our collective history. This is part two of a series recognizing the efforts of groups large and small. It will continue in the summer CFIDS Chronicle and in a special publication due out this fall.
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Photo Exhibit Summer and Fall Venues
The “Faces of Chronic Fatigue Syndrome” photo exhibit has been called moving, inspirational and powerful. It’s been seen by thousands in locations from Union Station (D.C.) to Mall of America—raising awareness about CFS and the impact the illness has on the lives and families of those who have it. As the exhibit makes its way to various cities across the country, don’t miss your chance to see it. Here’s where it’s going to be this summer and fall.
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CFS Seminar Coming to Denver
The Education and Empowerment series is coming to Denver on October 13 with the latest “kNOw MORE CFS” seminar—a half-day session for CFS patients and families, featuring two CFS experts. Here are the early details so you can “save the date.”
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Personal Stories: Life University
Shirley Kiefer has had CFS since 1988 and was a support group leader for 13 years. Her experience has reshaped the way she looks at the illness and its role in her life.
Get the full story>>