In this Issue
CFIDSLink Electronic Newsletter
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In this Issue
- Is CFS a Brain Disorder?
- CFIDS Research Applications Reviewed at NIH
- CFS: Personal Experience about Personal Choices
- New Approach to CFS Research
- Living with CFIDS: A Personal Story
- Federal CFS Advisory Committee
- Be A Part of the Association's 14th Annual Lobby Day!
- CFIDS Advocate Fighting Global Poverty with Bono
- Annual Fund Wrap-Up
- American Voices in the Corridors of Congress
- IACFS - Call for Papers
- Research Updates
- Bulletin Board Notices
Is CFS a Brain Disorder?
The highly anticipated special issue of the CFIDS Chronicle is about to mail to Chronicle subscribers everywhere. As a special benefit to CFIDSLink readers, we're pleased to preview an article from this double-issue.
In "Is CFS a Brain Disorder?" Gudrun Lange, PhD—one of the leading researchers on CFS and cognitive function—provides a guided tour of what research tells us about CFS and the brain. This informative article addresses differences in CFS brain studies, the cognitive difficulties documented and an explanation of the abnormalities researchers are discovering through neuroimaging technology. Enjoy this special preview at http://www.cfids.org/cfidslink/2006/brain.pdf then watch here for information on how to get your own copy of The Science & Research of CFS.
CFIDS Research Applications Reviewed at NIH
29 proposals for new research on neuroimmune mechanisms in CFS were reviewed on January 26, 2006. You can view the latest news on the outcome of the review that promises to support $4 million in innovative studies at http://www.cfids.org/cfidslink/2006/nih.asp.
CFS: Personal Experience about Personal Choices
Over the near-decade that's past since her diagnosis, Trisha Steefel has learned about more than the sinus problems, tinnitus, headaches and an exhaustion so intense it cannot be put into words. To Trisha, CFS is an illness about choices. Read her article at http://www.cfids.org/cfidslink/2006/steefel.asp.
New Approach to CFS Research
Studying health instead of disease has become the motto of an international study being conducted into CFS. Read on at http://www.cfids.org/cfidslink/2006/insight-matters.asp.
Living with CFIDS: A Personal Story
17-year-old Katy Gehling has struggled with CFIDS for years. This month, Sue Gehling shares her daughter's story. Visit http://www.cfids.org/cfidslink/2006/gehling.asp to read Katy's story, then please consider sharing your own. Send your personal story to Pam Young at firstname.lastname@example.org.
Federal CFS Advisory Committee
New members have been appointed to the federal CFS Advisory Committee. Visit http://www.cfids.org/cfidslink/2006/cfsac.asp for an update.
Be A Part of the Association's 14th Annual Lobby Day!
Don't let the scandalous headlines sour you on Capitol Hill. The Association's advocacy efforts have always had at their heart real people telling compelling stories about how CFIDS has impacted their lives. In the current climate of Congressional ethics reform, reasonable policy requests made by real people may carry more weight than ever before.
Watch your inbox for the details of our 2006 Lobby Day. We promise this event will be our best yet!
CFIDS Advocate Fighting Global Poverty with Bono
Tom Sheridan has worked on behalf of the CFIDS Association for 14 years, skillfully representing the interests of the Association and people with CFIDS to Congressional decision-makers and agency officials. If you've had the opportunity to meet Tom at the Association's annual Lobby Day event, you know what a dynamic, intelligent and deeply committed person he is. So does the world's biggest rock star, Bono. Read on at http://www.cfids.org/cfidslink/2006/tom-bono.asp.
Annual Fund Wrap-Up
More than 1,100 Association friends contributed to the 2005 Annual Fund, raising more than $282,800 to help in the fight to end CFIDS.
Gifts to the Annual Fund: advance leading-edge CFIDS science; build recognition of CFIDS as a serious and widespread medical disorder; and help ensure that issues important to the CFIDS community are heard and addressed on Capitol Hill.
Thanks to everyone who supported the Annual Fund. If you’ve not yet made your gift, please do so today and help end CFIDS and alleviate the tremendous pain, isolation and disability CFIDS causes. Simply visit http://www.cfids.org/ecommerce/online-donations.asp.
American Voices in the Corridors of Congress
For people with CFIDS, getting heard is vital! That's why Eileen Holderman took part in the CFIDS Association of America's annual Lobby Day event this past spring and helped voice the concerns of the one million American men, women and children living with CFIDS. Read about Eileen's experience at http://www.cfids.org/cfidslink/2006/holderman.asp.
IACFS - Call for Papers
The Conference Planning Committee of the International Association for Chronic Fatigue Syndrome (IACFS) invites potential presenters to submit abstracts for their next biannual meeting. Visit http://www.cfids.org/cfidslink/2006/iacfs.asp for additional information.
For up an up to date listing of CFIDS-related research abstracts visit http://www.cfids.org/cfidslink/2005/research-updates.asp.
Bulletin Board Notices
Visit http://www.cfids.org/community/bulletin-board.asp for up-to-date news and happenings within the CFIDS community.