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In this Issue
January 2007
CFIDSLink Electronic Newsletter  

CFIDSLink is e-mailed monthly free of charge to all those interested. To sign up for the electronic newsletter visit http://www.cfids.org/subscribe.asp.

In this Issue

  • From the Desk of Kim McCleary
  • Reproductive Issues
  • Treatment Study of Antiviral Drug
  • Don't Miss the Brand-New Online Banner Ads for CFS!
  • Get Your Copy of the Terrific Media Coverage of CFS
  • CFS Editorial in Nursing Magazine
  • Annual Fund Update
  • Personal Story: Making Music

From the Desk of Kim McCleary

The CFIDS Association's President and CEO shares some statistics from 2006 and previews what's ahead this year in CFS research and advocacy.

See http://www.cfids.org/cfidslink/2007/jan-ftdo.asp 
 

Reproductive Issues

Though more women than men have CFS, when it comes to understanding the gynecological ramifications of the illness, few definitive answers exist. But the research to date reveals some intriguing aspects of the illness.

See http://www.cfids.org/cfidslink/2007/reproductive.asp 
 

Treatment Study of Antiviral Drug

Based on promising results from a preliminary study, Roche Pharmaceutical, which manufactures the drug valganciclovir under the brand name Valcyte, has granted $1.3 million to Dr. Jose Montoya to conduct a randomized, placebo-controlled, double-blind study set to begin this quarter at Stanford University Medical Center. The study will assess the effectiveness of the drug in treating a specific subset of CFS patients.

See http://www.cfids.org/cfidslink/2007/valcyte.asp

 

Don't Miss the Brand-New Online Banner Ads for CFS!

As part of the national CFS education and awareness campaign sponsored by the CDC and the CFIDS Association, new online ads are appearing on the websites for Ladies’ Home Journal and Better Homes and Gardens in conjunction with the print ads that are appearing in the magazines themselves. The ads differ from the print ads, so don't miss your chance to see them and to share the links with others.

See http://www.cfids.org/cfidslink/2007/pac2.asp

 

Get Your Copy of the Terrific Media Coverage of CFS

The incredible media response to the press conference announcing the national CFS public awareness campaign is unprecedented. To capture and commemorate this historic moment in the long battle the CFS community has been waging, the CFIDS Association has created a DVD with complete press event coverage and resulting broadcast media, and a press clippings packet that contains articles which appeared in the New York Times, Wall Street Journal, the publication of the American Medical Association and other major media outlets. Both are available now at a low price.

See http://www.cfids.org/cfidslink/2007/pac1.asp

 

CFS Editorial in Nursing Magazine

In the December installment of the New York/New Jersey edition of Nursing Spectrum—a professional publication for registered nurses—senior staff writer and registered nurse Lorraine Steefel shared the challenges she and her daughter face when seeking knowledgeable and compassionate medical care for CFS. We've reprinted her editorial here to show some of the CFS dialogue taking place in the health care community.

See http://www.cfids.org/cfidslink/2007/upfront.pdf 
 

Annual Fund Update

So far more than 1,200 Association friends have contributed to the 2006 Annual Fund, raising $277,458 to help in the fight to end CFS.

If you've not made your gift, please do so today. There's never been a better time to engage new investigators in the study of CFS, to accelerate the pace of research that offers hope for new treatments and a better understanding of the disease and to provide answers—and progress toward improved health—to people with CFS.

Please help us end CFS and the tremendous pain and disability it causes. Contribute today at http://www.cfids.org/ecommerce/online-donations.asp.

 

Personal Story: Making Music

Chronic fatigue syndrome left Tamara Lewis struggling to piece together her own financial and emotional support and longing for something in her life that would bring her some pleasure. Discovering music has brought harmony into her world, and now into ours as well.

See http://www.cfids.org/cfidslink/2007/tamara.asp