Back to 2010 Listing
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In This Issue
From the CEO
News & Notes
From the CEO's Desk
In 2009, CFS commanded the world's attention with the landmark research published in the prestigious journal Science. Many other important events and milestones were marked in the past year, too. Here's a month-by-month recap of some of the CFIDS Association's contributions to the movement from 2009.
For the fifth time in the Association's 22-year history, a new chairman will lead the Board of Directors beginning this month. In "Passing the Torch," outgoing chairman Jennie Spotila, J.D. and incoming chairman Adam Lesser share their thoughts about what motivates them as volunteer leaders.
A study testing for evidence of XMRV infection in CFS patients in the United Kingdom has reported negative results. This is the first publication following the article in the top-ranked journal Science from Whittemore Peterson Institute, the National Cancer Institute and Cleveland Clinic that garnered worldwide attention. Here is Suzanne D. Vernon, PhD's analysis of how it compares to the Science paper, and why it heavily underscores the need for more research. The Association's press release was distributed today to news outlets.
Several very different infectious agents have been shown to result in persistent CFS-like illness in a subset of those who become acutely ill. In this article, scientific director Suzanne D. Vernon, PhD, reviews recent literature on "Precipitating Pathogens."
Every quarter the six research groups funded by the CFIDS Association must submit written progress reports to our scientific director. Here are recent updates from each of the research groups you helped us support for 2009-2010.
To help bring information about current research topics to you, we're introducing a series of online webinars. Dr. Lucinda Bateman will explain XMRV and its significance in our first webinar on January 18, 2010. Watch your inbox for more program details and sign-up information.
Two groups in the U.K. have announced joint funding for a replication study and Cornell University has advertised a new research position for an XMRV/CFS study.
We regularly update our XMRV page with reports and resources as they are published. Check it frequently.
Write to Secretary of Health Kathleen Sebelius and elected officials to request action on the CFS Advisory Committee's latest set of recommendations and the urgency of expanded research. We've made it easy for you with letter templates at our Grassroots Action Center.
One of our advocacy initiatives for 2010 will be to seek inclusion of CFS in the Congressionally Directed Medical Research Program (CDMRP) funded by the Department of Defense. To be successful, we'll need to demonstrate the impact of CFS on the warfighter. Read more about the CDMRP and email us at email@example.com if you are a current or retired member of the military whose CFS impacted your military service.
With the intense interest in XMRV and related developments, several new online discussion forums have been created and participation in existing ones has grown. Within our existing resources, we try to keep up with the rich, informative dialogue. In response to questions posed on our Facebook page, in discussion forums and through e-mail, postal mail and phone calls, we've posted an Association FAQ page; we'll update it regularly to reflect the dynamic community dialogue.
News & Notes
Discover magazine included the Whittemore Peterson Institute's XMRV publication in its Top 100 Science Stories of 2009. View #55 here: http://discovermagazine.com/2010/jan-feb/055.
Mixed martial arts fighter Ryan Jensen sported a "SolveCFS.org" logo on his shorts during a televised UFC fight broadcast from Las Vegas on January 2, 2010. His "corner" banner also featured the SolveCFS logo. Ryan is a close friend of Association Board member Brian Smith and was happy to raise awareness about CFS, even though he was not successful in his bout.
A new issue of our print publication, SolveCFS: The Chronicle of the CFIDS Association of America, was mailed to supporters on Dec. 11. Make a donation of $35 or more at to get your copy by mail. We'll post the online version next month.
To conserve funds, we no longer publish a printed annual report, but a shorter online report for 2008 is available on our website.