In this Issue
June 2006
CFIDSLink Electronic Newsletter
CFIDSLink is e-mailed monthly free of charge to all those interested. To sign up for the electronic newsletter visit http://www.cfids.org/subscribe.asp
In this Issue
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From the Desk of K. Kimberly McCleary
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Lobby Day 2006 Report
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Public Awareness Campaign Update
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Two Pediatric CFS Studies from the UK
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10 Solutions for Daily Life: Cognitive Tips
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Ohio kNOw MORE CFS Seminar a Hit with Participants
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Next up in the CFIDS Chronicle
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Personal Story: Ashley Frankel, High School Senior
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Bulletin Board Notices
From the Desk of K. Kimberly McCleary
CFIDS Association President Kim McCleary shares her reflections on today's launch of the much-anticipated public awareness campaign and all the effort that has gone into this milestone occasion. See http://www.cfids.org/cfidslink/2006/june-ftdo.asp.
Lobby Day 2006 Report
A record crowd turned out for the 14th annual Lobby Day in Washington, D.C. Read what they faced, learned and achieved during this eventful two days in May. Plus, find out how you can keep the momentum going. See http://www.cfids.org/cfidslink/2006/ld06.asp.
Public Awareness Campaign Update
The national public awareness campaign is underway, with the first of the print ads in two major publications and other exciting developments. Read on for the latest updates on this campaign to spark CFS awareness. See http://www.cfids.org/cfidslink/2006/pac3.asp.
Two Pediatric CFS Studies from the UK
Though most CFS research focuses on adults with the illness, children and adolescents also suffer from CFS. Two studies this year in the UK explored different aspects of pediatric CFS. For a brief overview of the findings http://www.cfids.org/cfidslink/2006/pediatric.asp.
10 Solutions for Daily Life: Cognitive Tips
Response to the CFIDS Chronicle's "10 Solutions for Daily Life" has been so positive that we're making it a regular element of the publication. Get an easy-to-print copy of spring's installment at http://www.cfids.org/cfidslink/2006/10-tips.pdf, with tips for managing and improving cognitive function.
Ohio kNOw MORE CFS Seminar a Hit with Participants
Speakers Patricia Fennell and Dr. David Bell shared their CFS expertise with nearly 100 participants at the recent kNOw MORE CFS seminar in Akron, Ohio, May 20th. Learn more at http://www.cfids.org/cfidslink/2006/ohio.asp.
Next up in the CFIDS Chronicle
The CFIDS Chronicle is the print companion to the CFIDSLink. In the upcoming issue, Jonathan Stein explores private disability insurance practices, researcher Floris de Lange explains the latest CFS findings from brain imaging technology and we serve up the next installment of the four part series on the biology of stress.
Subscribing to the CFIDS Chronicle gets you four issues per year, plus the biannual CFS Research Review. It’s all a part of CFIDS Association membership. Visit http://www.cfids.org/support/membership.asp to learn how to start your subscription/membership.
Personal Story: Ashley Frankel, high school senior
Each spring, the New Jersey Chronic Fatigue Syndrome Association awards a scholarship to a high school graduate with CFS who is planning to attend college in the fall. We’re pleased to feature the essay of this year’s winner, Ashley Frankel. Ashley is planning to attend Lynn University in Boca Raton, Florida. Read her essay at http://www.cfids.org/cfidslink/2006/frankel.asp.
Bulletin Board Notices
Visit http://www.cfids.org/community/bulletin-board.asp for up-to-date news and happenings within the CFIDS community.
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