In this Issue
November 2007
CFIDSLink Electronic Newsletter
CFIDSLink is e-mailed monthly to all those interested. To sign up for the electronic newsletter visit http://www.cfids.org/subscribe.asp.
In this Issue
From the Desk of Kim McCleary
Scientifically Speaking
Today the CFIDS Association announces the addition of Dr. Suzanne Vernon to its staff as scientific director. President & CEO Kim McCleary shares her perspective on why the benefits of having Dr. Vernon on board will deepen over time.
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Association Hires Scientific Director
Breaking news! The CFIDS Association is pleased to announce the appointment of Suzanne Vernon, PhD, as scientific director, a brand-new post created to advance research in the field of CFS and accelerate progress in developing diagnostic markers and treatments for this illness. Read all about Dr. Vernon and the Association’s campaign to raise one million dollars to fuel the program in the press release (PDF) issued today.
Research Matters
FDA Approval for Ampligen Sought
On October 11, Hemispherx Biopharma, Inc., announced filing a new drug application with the Food and Drug Administration to market its experimental therapeutic, Ampligen, as a treatment for CFS.
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CFS Heart Rate Dysfunction Persists in Sleep
A study published in Autonomic Neuroscience found that increased heart rate and reduced heart rate variability in CFS patients was present during sleep, suggesting an ongoing state of autonomic dysfunction.
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CFS Findings Presented at Medical Conference
At this month’s Southwest American College of Sports Medicine Conference, Staci Stevens of the University of the Pacific will present findings from Association-funded research about exercise challenge and the pathophysiology of CFS that she conducted with colleagues Dr. Mark VanNess and Dr. Christopher Snell. This is just one more way your donations to the CFIDS Association are leading to increased attention to this illness.
Grassroots Champions Fight for CFS Advances
More than 79 online activists achieved the ranks of Grassroots Champions this year by sending 50 or more messages to legislators, media and public health officials, pushing for greater attention to the needs of people with CFS. Here’s who they are and what they had to say.
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Organizations Making History: Part III
Continuing our series of profiles on some of the organizations that have helped shaped the history of the CFS community, here’s a copy of the CFIDS Chronicle story featuring CACTUS, Co-Cure, the Mass CFIDS Association, OFFER, and ProHealth, plus some quotes from leaders of other CFS organizations.
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Top Tips for CFS Troubles
Culled from our series on “Solutions for Daily Life,” here’s a sampling of practical tips from CFS patients on dealing with doctor visits, brain fog and isolation.
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Education and Empowerment Comes to Denver
More than 120 CFS patients, their families and physicians turned out to hear Dr. Suzanne Vernon, Dr. Steven Goodman and Kim McCleary speak about CFS research, treatment and awareness when the Association’s “kNOw MORE CFS” seminar came to Denver, Colorado, October 13. Part of the Association’s Education and Empowerment series, these seminars aim to bring CFS experts to local communities across the U.S. The traveling photo exhibit, “The Faces of Chronic Fatigue Syndrome,” was on display in Denver from October 11–14.
Photo Exhibit Comes to Atlanta in November
Check out CFS awareness at the Atlanta-Fulton County Public Library (1 Margaret Mitchell Square) when “The Faces of Chronic Fatigue Syndrome” traveling photo exhibit is on display in the Library Express area from November 26 to December 1. One local “face” is that of physicist and former professor Wilhelmina Jenkins, who has battled CFS since 1983. You can get the details for this location and other upcoming venues from the public awareness campaign website at http://www.cfids.org/sparkcfs/default.asp.
Adding to Hope this Thanksgiving Season
This season is generally a time to reflect on good fortune and to ponder thankfulness and hope. Despite the hardship of CFS, hope survives . . . for cures, for a healthier future, for recovering life’s simple joys. They’re all within our reach. Here’s how you can help.
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Personal Stories: Pumpkin Patch Advocacy
When Gracia Roemer created her pumpkin display for Weber County, Utah’s Pumpkin Alley festival, she had CFS on her mind. Soon so did the thousands of people who attended the annual event and saw her display titled “Chronic Fatigue Syndrome: Kids Get It, Too.”
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