November 2008
CFIDSLink—e-News 

CFIDSLink is e-mailed monthly free of charge to all those interested. Click here to sign up for this electronic newsletter.

In This Issue

Research Matters
Advocacy Counts
Treatment Matters
News & Notes
You Matter

Dear Friend,

Throughout our 21-year history, the CFIDS Association has been staunchly committed to CFS research. Year after year, we've demonstrated that commitment in two main arenas . . . [read on From the Desk of Kim McCleary]

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Research Matters

Largest Slate of Research Grants To Be Awarded
The Campaign to Accelerate CFSResearch raised record money this year to propel CFS research forward. Meanwhile 33 investigators submitted grant proposals for Association funding. After a robust and thorough review process--including assessment by 40 scientific experts from a variety of fields--we are on the brink of announcing our largest cycle of research grants ever. Watch your inbox this month for a special CFIDSLink announcing the grant recipients and the work they'll be doing. Then look for the special section in the "Science Issue" of the CFIDS Chronicle coming out early in 2009. Click here for more information on the Association's research program.

More research stories:
Research Roundup: Four CFS Studies Published This Fall

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Advocacy Counts

Report from the Federal CFS Advisory Committee Meeting
The federal CFS Advisory Committee (CFSAC) met in Washington, D.C., last week to hear agency updates, gather testimony from members of the public and make recommendations to the secretary of health. The CFIDS Association was well-represented at the meeting.
Here is our report on the meeting and its outcomes, with links to testimony from five CFIDS Association staff and members of the Board of Directors.
Get the full story >>

More advocacy stories:
Excerpts from This Year's Congressional Briefing on CFS

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Treatment Matters

Kaiser Videoconference Educates 700+ Clinicians
The Kaiser Permanente network in northern California broadcast a videoconference on CFS clinical care to more than 700 medical professionals. Led by Kenneth Lee, MD, and Dedra Buchwald, MD--and supported by material from the CFIDS Association--the presentation covered best practices, risk factors, viral triggers and information about CFS research findings.
Get the full story >>

More treatment stories:
Tips for Making the Most of Limited Energy

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News & Notes

Video: News Coverage of CFS Accompanies Exhibit As It Travels the U.S.
As "The Faces of Chronic Fatigue Syndrome" photo exhibit crisscrosses the United States, it draws news coverage in the cities in which it appears, helping to educate the public about the realities of this illness. Here are three pieces of CFS news coverage that were generated in conjunction with the exhibit.
Get the full story >>

Meet the New Members of Our Board of Directors
Four new people from the CFS community begin their terms on the CFIDS Association's Board of Directors this month: a scientist, a community activist, a psychologist with chronic illness expertise, and an artist/activist with a child who has CFS.

Learn more about these new board members, and see how other board members have demonstrated active support for the cause recently.
Get the full story >>

Next CFIDS Chronicle Spotlights Science; Features Special Section!
Are you a CFIDS Chronicle subscriber? If so, watch your mailbox for the upcoming "Science Issue" coming out in February of 2009. Articles include briefings on oxidative stress and neuroimmune function, PLUS a special section profiling all of the grant recipients and studies funded through the Campaign to Accelerate CFS Research. Enjoy that and all the other coverage you've come to expect in the only print magazine dedicated exclusively to the information needs of the CFS community. Not a subscriber? Become an Association member and start your subscription now.

You Matter

Personal Story: Dreams at Stake
Thirty-six-year-old Laurel Bertrand has been bedridden with CFS for eight years, but she has also developed companionship and dreams for her future. She wants to share her story in hope of raising awareness and fostering progress that will help her reach her dreams.
Get the full story >>