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New Study Links CFS to Enterovirus Infection
Researchers John and Andrew Chia have published a study in the Journal of Clinical Pathology that a group of viruses known to cause gut and respiratory infections may be associated with CFS.
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CFS Researcher Gets Grant from NIH to Study Retrovirus
On September 21, 2007, Brigitte Huber was awarded a grant from the National Institutes for Health (NIH) to study the presence of a specific retrovirus (HERV-K18) as a predictor for CFS. The grant was awarded based on data from Huber's pilot study, funded by the CFIDS Association.
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NIH Meetings Target CFS Researchers
In September the National Institutes of Health (NIH) sponsored a learning session to inform CFS researchers about "best practices" in grant writing and to highlight specific NIH funding opportunities that match current directions in CFS research.
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RFA for Chronic Pain Syndromes, Including CFS
The NIH is extablishing the Multi-disciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network to understand the relationship between FM, CFS, IBS and interstitial cystitis.
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Association Expands Its Research Program
Research is the key to so many goals embraced by the CFS community. In the latest move to advance the field of CFS research the Association is preparing to shoulder a greater share of the responsibility for progress by hiring a full-time, doctorate-level Scientific Director to translate scientific ideas and opportunities into action.
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Treatment FYI: Controlling Pain
Pain management is a major component in the lives of many people with CFS. Here's a "print-and-go" page you can take to your doctor with some advice based on Dr. Benjamin Natelson's experience treating pain in patients with CFS.
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Association Earns Top Rating from Watchdog Group
The nation's largest charity evaluator, Charity Navigator, has awarded the CFIDS Association its highest rating-four out of four stars. The watchdog group assesses how nonprofit organizations steward their donors' resources. Learn more and link to their report on the Association.
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CFS Experts, Exhibit Comes to You!
Experts in Denver Next Week, Oct 13
On October 13 Dr. Steven L. Goodman, Dr. Suzanne Vernon and Kim McCleary will be in Denver at the Sheraton Denver West in Lakewood, Colorado, for the seventh "kNOw MORE CFS" seminar, part of the Association's Education and Empowerment series. There's still time to register, but seating is limited. Save by registering online before October 5. Visit http://www.cfids.org/ecommerce/products.asp?setCategory=6 for seminar details. "The Faces of CFS" photo exhibit will also be in Denver and open to the public at Park Meadows October 11-13. Visit http://www.cfids.org/cfidslink/2007/090505.asp for additional information on the photo exhibit.
National CFS Photo Exhibit Comes to Chicago
The photo exhibit will blow into the "Windy City" October 22--29. Stop by the first floor near Nordstrom of Westfield North Bridge, 520 N. Michigan Avenue, Chicago, Illinois, to see this exciting display. Learn more about "The Faces of CFS" photo exhibit at http://www.cfids.org/sparkcfs/photo.asp!
It’s Easy to Access Past CFIDSLink Stories
Ever want to find that personal story you liked so much from a previous CFIDSLink? Or quickly access a research story to print for your doctor? The CFIDSLink archive features access to all the stories in a given edition (with a few sample articles right up front) for every year from 2003 on. So bookmark the CFIDSLink archive and be one click away from unlimited access to CFS news, announcements and personal stories! Access the archives.
Visit http://www.cfids.org/archives/cfidslink.asp
Using E-mail for Good: A Success Story
A year ago the Association created an online community called My Cause to give cyber-savvy Link readers (and others) a tool to raise awareness and funds to help conquer this debilitating illness. You responded by collectively raising nearly $40,000! Here's a big thank you on behalf of the Association and everyone your generosity helped us serve this year! In response, we've created some new templates and graphics you can use to update your pages and keep the progress going!
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Reserve Your Copy of "Defining Moments"
Production is wrapping up on a one-of-a-kind, special publication commemorating 20 years in the history of CFS, including personal essays by Seabiscuit author Laura Hillenbrand and other notable writers with CFS.
To receive a copy of "Defining Moments: 20 Years of Making CFS History", simply make a donation http://www.cfids.org/ecommerce/online-donations.asp or become a CFIDS Association member http://www.cfids.org/ecommerce/membership.asp between now and October 31. All active Association members and donors will be mailed a copy of this one-of-kind edition in November.
Personal Stories: The Unexpected Enemy
October is Domestic Violence Awareness Month. In recognition of this important subject, we've chosen to share with you a story submitted by an Association member who experienced domestic abuse firsthand, removed herself from the source and hopes to alert people with CFS about an issue that can affect us all.
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