Back to 2011 Listing
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In This Issue
FROM THE CEO'S DESK
NEWS & EVENTS
FROM THE CEO'S DESK
A high-profile study of a promising new approach to treating leukemia reminded many of us of a similar study of CFS from 10 years ago. Read more...
The Sept. 23 online issue of the journal Science includes three articles that add both light and heat to the debate over the role of XMRV in CFS. Kim McCleary outlines the coverage, response from the blood safety community, media and the Association. Read more...
Long-awaited results from the Blood XMRV Scientific Research Working Group's Phase III study are among the articles in today's issue of Science. Authors of the 2009 study have retracted the portion of the data from the Cleveland Clinic. Scientific director Suzanne Vernon, PhD, breaks down the studies. Read more...
Science hosted a live online chat on Sept. 22 with Dr. Michael Busch, senior author of one of the Science papers published in the Sept. 23 online issue, and Dr. Jay Levy, a virologist who has studied CFS, HIV and XMRV.
Dr. Kathleen Light and her team at University of Utah have secured a $1 million grant from the National Institutes of Health to continue their CFS biomarker studies, funded in 2009-2010 by the CFIDS Association. Read more...
XMRV and its reported association with CFS has been the subject of 17 published studies, 15 of which have not found evidence of a link. "The X Factor," to be published in the summer-fall issue of SolveCFS (now at press), summarizes the two-year effort to square conflicting data. Read more...
Two important publications about XMRV were issued in early September. A special issue of Advances in Virology and a technical assessment from the European Centre for Disease Control add to the growing literature about XMRV. Read more...
Benjamin Natelson, MD, describes his team's next steps to follow up exciting results from a spinal fluid marker study published early this year in, "CFS: Is It All In the Brain?" Read more...
Three years after infection with Giardia lamblia, a common intestinal parasite, 46.1% of a large study population in Norway reported persistent chronic fatigue. Although itís not possible from this study to assess how many met CFS criteria, this study adds data on triggers of post-infectious illness. Read moreÖ
Alan Light, PhD, Charles Vierck, PhD, and Kathleen Light, PhD, have authored a book chapter titled, "Translation from Mouse Sensory Neurons to Fibromyalgia and CFS" in the text, "Translational Pain Medicine: From Mouse to Man." Read more...
The National Institute of Health has posted its report of the ME/CFS State of the Knowledge Workshop held April 7-8, 2011. Read more...
Sweden's largest newspaper ran several articles about ME/CFS.
Research news is regularly updated on our Research1st website. Listings and descriptions of recent journal highlights, current research initiatives and media coverage complement blog posts that address a variety of topics. Subscribe to email alerts about new posts to the site.
Our scientific director, Suzanne D. Vernon, PhD, was in Stockholm last month for a symposium for the Ministry of Health with other CFS experts. Her presentation and media coverage are recapped in "Today in Stockholm." Read more...
The coding used by insurers and other institutions to track CFS-related claims will be addressed by the ICD-9-CM Coordination and Maintenance Committee on Sept. 14 at a meeting in Baltimore. Read more (from the Coalition 4 ME/CFS)...
The CFIDS Association nominated four highly qualified individuals to serve on the federal CFS Advisory Committee. Read more...
Dr. Vivian Pinn
Dr. Vivian Pinn, who directed the National Institute of Health's Office ofResearch on Women's Health (ORWH) for two decades, retired last month. CFS research at the NIH is coordinated through the ORWH. A national search is being conducted for a successor. Read more...
Lucinda Bateman, MD, addresses the huge information gap that separates people with ME/CFS from their primary care and specialty providers. Read more...
NEWS & EVENTS
Through a new collaboration with patientINFORM, the CFIDS Association will be able to share links to full-text versions of many medical articles with Research1st.com readers. Read more...
National Public Radio covered CFS in two Labor Day reports, with mixed results. Joanne Silberner reported on current research and the experience of CFS, while Patti Neighmond focused on the controversial PACE study of behavioral therapies. HealthNewsReview gave Neighmond's story 3 stars out of 10.
The IACFS/ME will host the 10th International CFS/ME Research and Clinical Conference in Ottawa, Canada, Sept. 22-25, 2011. The conference theme is "Translating Evidence Into Practice."
BioMed Central and Retrovirology's second biennial "Frontiers of Retrovirology" conference will be held in Amsterdam, October 3-5, 2011.
If you're in the Denver, Colo., area on Sunday morning (Sept. 25), tune into KHOW-AM 630 to hear two segments about CFS on "The Caring Generation." Patient Craig Horth will be interviewed at 9:32 a.m. (Mountain Standard Time), followed by a conversation with the Association's Scientific Director Dr. Suzanne Vernon at 10:32 a.m. (MST).
The documentary, "Voices from the Shadows," portraying the stark reality of young people affected by ME/CFS, will be shown on Oct. 8 at the Mill Valley Film Festival, held Oct. 6-16. A full schedule of films and related events is posted here.
The Texas A&M Health Science Center will present a symposium, "Post-Infectious Syndromes Affecting the Nervous System," on Oct. 13-14, 2011.
The NJ CFS Association's fall conference "New Horizons in Public Health, Treatment & Diagnostics in CFS," will be held Oct. 16, 2011 in Eatontown , NJ.
Laura Hillenbrand's "Unbroken" is a finalist for the prestigious 2011 Dayton Literary Peace Price. Congratulations, Laura! Read more...
The summer-fall 2011 issue of our print publication, SolveCFS: The Chronicle of the CFIDS Association of America, is at press and will be mailed to donors and supporters next week. To receive a complimentary copy, please send your name and mailing address to email@example.com with "SOLVECFS" in the subject line.