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SolveCFS BioBank
We are pleased to announce that the CFIDS Association of America has completed the rigorous approval process to become part of the Genetic Alliance BioBank, an innovative biobank infrastructure that allows nonprofit organizations to build biobanks. Genetic Alliance has set high standards for participant involvement in research. It provides standardized protocols and allows for ethical re-contact and robust privacy and security protections. The SolveCFS BioBank makes this state-of-the-art system available to eligible chronic fatigue syndrome (CFS) patients and approved researchers.
The SolveCFS BioBank will collect and store a bank of biological samples (such as blood, tissue, cells and DNA) and clinical information at the Genetic Alliance laboratory facility from individuals with CFS and unaffected individuals aged 10 and older. The samples and information will be used by approved researchers to identify biomarkers, explore the causes of and potential treatments for CFS.
The CFIDS Association of America established the SolveCFS BioBank to ensure that privacy and confidentiality are protected and samples are available to researchers whose research projects have been approved by CFIDS Association of America Medical Research Advisory Committee, rather than the lab of just one researcher. Therefore, individuals can enroll once to participate in multiple projects. The CFIDS Association of America and Genetic Alliance are responsible for protecting your privacy and confidentiality throughout the process.
Page updated March 29, 2010
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