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Growing up with a disabling disease like
chronic fatigue and immune dysfunction syndrome (CFIDS) is always a challenge.
Because most people don't know that children and teenagers can get CFIDS, it
often takes years for them to be diagnosed. They face numerous obstacles as they
fight for a healthy childhood and a quality education.
The CFIDS Association of America's youth program is working to
improve the lives of young persons with CFIDS by providing emotional and
educational support, coping tips and medical information to them and their
families. We're also helping pediatricians, family practitioners, school nurses
and teachers learn how to recognize pediatric CFIDS and how to help kids who
have it.
Gaining a quality education is one of the top problems for
young people with CFIDS (YPWCs). Below are some resources that you might
find helpful as you navigate the educational system! Additional information
for YPWCs and those who care about them is available at
http://www.cfids.org/youth.asp
.
Energy Saving
Tips for YPWC Students by Staci R. Stevens, MA
Supporting the Child With CFIDS: The Rights
and Needs of YPWCs
by Jenn
Waterman
What Schools Need to Know About
CFIDS/CFS by Michelle L. Banks, MS Ed
Tips
for
Teachers of Young People with CFIDS by Kate Anderson, MEd
Strategies for Learning with CFIDS
by Rebecca C. Moore and Linda Miller Iger, PhD
Studying
for Exams by Christy Record
and Linda Miller Iger, PhD
Test-Taking Tips
by
Jenn Waterman
Preparing for College and Independence by Rebecca C. Moore
Ten Tips for Surviving College with CFIDS
by Rebecca Bailey
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