Lobby Day Advocates Put a Face on CFIDS
As a former United States Immigration
and Naturalization Service (INS) lawyer, Sharon Greenspan is intimately familiar with the inner workings
of the federal government. She has prepared testimony for others to present before Congress and, on occasion,
personally lobbied legislative bodies. Greenspan is enthusiastic about utilizing that experience during
the CFIDS Association of America’s Lobby Day 2005 activities.
“I’ve attended two of the last three Lobby Days, and I can’t tell you how
powerful a feeling it is to sit in front of those lawmakers,” said Greenspan.
“Lobby Day is very different from attending a conference. This is an opportunity
to knock on somebody’s door and to speak to them face-to-face. This is a chance
to say to Capitol Hill staffers, ‘Look at me because this could happen to you or
to someone you know and love.’”
worked long hours in the office, in court and as a member of the INS speakers’
bureau prior to becoming ill in 1987. Six months into her strange illness she
was diagnosed with CFIDS. Greenspan was known for her hard work, dedication and
for rarely being sick, so her colleagues were supportive and didn’t doubt that
she was ill. She sees Lobby Day as an opportunity to use that support and her
reputation to put a face on CFIDS.
“We all want to make
a difference and to feel empowered. Lobby Day gives us that chance,” said
Greenspan. “Climbing those steps to the Capitol building is empowering, to be in
the Senate office building is empowering. And now that we’re sick, it’s even more important to
meet the people who run our country.”
Past participants and novices alike are
invited to join Greenspan for the 2005 Lobby Day. In recognition of May 12 as
International CFIDS Awareness Day, the CFIDS Association will hold its
annual Lobby Day on that
date, with the mandatory training session on May 11. People with CFIDS, family
members and friends make great advocates. The personal stories you share with elected
officials and their staff members can make a huge difference in how CFIDS fares in the
competitive funding environment we face this year.
To register for Lobby Day 2005 or to
obtain more information, visit
e-mail message to firstname.lastname@example.org
or call the Association’s resource line at 704-365-2343. Please note that the
deadline to reserve hotel rooms is Monday, April 11.