Out & About
for CFS and Cancer:
Something to Celebrate!
In June of this year, the state of
approved funding for a
state-of-the-art clinic and research center for CFIDS and cancer at the
University of Nevada-Reno. Securing the necessary funding from the state was a
labor of love for CFIDS advocates Annette and
Harvey Whittemore whose
daughter Andrea has struggled with CFIDS for
more than 17 years. The Whittemores worked with CFIDS clinician/researcher Dr.
Daniel Peterson and many local patients, including Jerry Crum and wife
Coco and Anita Patton to secure support for the center.
Jerry and Anita each testified twice before the state legislature, as did
Natalie Whittemore, Andrea’s younger sister. Researcher-clinician Dr. Dedra
Buchwald of the
Washington also helped substantiate the need and
potential benefits for the clinic, and several of
’s colleagues, Pete Ernaut,
Billy Vassilliadis, Alfredo Alonso and Greg Ferraro, were instrumental in
building support among lawmakers.
Governor Kenny Guinn and state Senator
William Raggio were among the early supporters of the measure as it worked its
way through the state’s legislative process. A long-running final session ended
with passage of a funding bill providing $10 million for the center. The state’s
funding is supplemented by more than $4 million in private funds raised by the
Whittemores and a commitment from the University to generously expand the
investment, promising a world-class facility and faculty for the center.
Whittemores are hosting an event on
September 8 to celebrate this shared dream becoming a reality. That evening
they will honor a CFIDS researcher, Dr. Dharam Ablashi, and a CFIDS advocate, Jerry
Crum, for their notable achievements and contributions to the field and to the creation of the
center. You can read testimony
to the state’s Senate Finance Committee on May 23. Harvey and Annette worked on
the testimony together, although Annette was unable to attend that hearing due
to a family emergency.
The CFIDS Association extends its deep and sincere appreciation to the
Whittemore family, Drs. Peterson and Buchwald, Jerry and Coco Crum, Anita Patton
and the many others who have collaborated to bring life to this center -- now a
symbol of hope for the community and soon a model for patient care and
cutting-edge research in CFIDS. We will continue to present updates on the
center through CFIDSLink and the Chronicle.
CFS Advisory Committee to meet on September
Department of Health and Human Services CFS Advisory Committee will meet in
D.C. on Monday, September 12 to hear federal
health agency reports, review the status of previous recommendations and accept
public testimony. CFIDS Association president & CEO Kim McCleary has been invited to speak and will
report on the meeting in the Chronicle and CFIDSLink. For more
information about the committee, visit http://www.cfids.org/advocacy/CFSCC.asp.