The Association’s 13th Lobby Day on Capitol Hill was
complemented this year by an online campaign – our first ever Virtual Lobby Day.
, nearly 3,000 letters were
sent by CFIDS advocates to their members of Congress, leaders of key funding
committees, the Secretary for Health and media professionals – a fantastic
We also used the
Center to help with follow-up from
visits to members of Congress made on Lobby Day. For some of these meetings, we
didn’t have anyone in our group from the representative’s district or the
senator’s state. With help from
OFFER, we were able to generate 88
letters from persons with CFIDS living in Utah to thank Kara Bacal for meeting
with our group and to ask that her boss, Senator Orrin Hatch, to support our
Lobby Day requests. Similar
efforts were made to enlist help from on-line advocates in other states and
districts to back up our Lobby Day requests.
On May 23, we asked advocates to help us respond to a
distressing article about CFIDS that ran in the June issue of “Psychology
Today.” We posted text of a letter in a form that could be edited completely by
the user, or sent as-is. More than 2,800 responses were directed to the
article’s author and editors at the magazine.
All of these actions are still “live” on the
Center site, and
you can help add to the above numbers
of responders. You’ll receive notice of special opportunities like these by
signing up for the
Grassroots Action Listserv. Close to 20,000 messages have been sent through the
Center since we launched it in April 2004; thanks to all who have demonstrated
the might of the CFIDS community!