The CFIDS Association Serves in Many Ways
The CFIDS Association was founded by one man with a single mission — to find
a cure for the devastating illness that was ravaging his life and turning his
family’s world upside down. Although much about the Association has changed
1987 when “headquarters” was an
extra room above Marc Iverson’s garage, we’re still driven by one unifying
vision — conquering chronic fatigue syndrome (CFS).
Today a 14-person Board sets policy
guides the growth and direction of the Association’s mission, programs and
services. A professional
to implement these priorities and address the diverse needs of the many
audiences our organization serves — people with CFS, their caregivers and family
members, health care professionals, legislators, public health officials, the media
and the general public.
The Association works hard to provide answers to the many questions CFS can
prompt. Explore our website,
a tremendous source of
information on CFS. The site includes: an interactive
questionnaire for people who think they might have CFS; areas dedicated
to the unique concerns of women, caregivers and young people; support group
information; resources for health care professionals; and more. Our quarterly
print publication, the
CFIDS Chronicle, covers a
broad spectrum of topics important to people with CFS and those who care about
them. We also publish a variety of
fact sheets and brochures to
help people better understand the complex nature of CFS, engage in more
meaningful conversations with their health care providers and make informed
choices about CFS-related decisions.
The CFIDS Association is the nation’s largest philanthropic supporter of CFS research
rare source of vital seed funding for novel CFS pilot studies.
were awarded $239,950 in
funding during our 2006-2007 funding cycle. We’re excited about the promise they
hold for accelerating the rate at which scientific knowledge translates into
improvements in the daily lives of people with CFS.
Since entering the advocacy arena in 1992, the Association’s investment in
sound CFS public policy has yielded $85 million in federal CFS research funding.
public policy program
we work vigorously to represent the
health care concerns and medical research interest of people with CFS to policy
makers and agency officials and to urge the federal government to allocate its
ample resources to finding the cause of, and cure for, CFS. And we are committed
to creating opportunities for people with CFS, their family members and friends
to have a voice in CFS public policy through grassroots
advocacy efforts, including annual Lobby Day, our
Grassroots Action Center
and other activities.
The CFIDS Association is dedicated to improving the public’s
CFS, meeting the information needs of people with CFS and those who care about
them, advancing innovative CFS research, improving the detection, diagnosis and
management of CFS and ensuring that people with the illness are vigorously
represented on Capitol Hill.
To learn more about the Association’s purpose, programs and recent
accomplishments, request a copy of our 2005 Annual Report, available this month.
For your copy, please call 704-365-2343 or e-mail firstname.lastname@example.org with
your name and postal mailing address and the subject line “Annual Report.”
Through all of our efforts, we are determined to defeat CFS. But we can’t do
it without the help of people like you. So please
Your support does make a