CFIDS Association President and CEO Kim McCleary
From the CEO's Desk
This issue of the Link is chock-full of news about upcoming events, recent developments and ongoing activities. We hope you’ll read our entire message here and that you’ll click through the stories, but in case you’re short on energy or time, here are a few key highlights we don’t want you to miss:
- We have three webinar programs this month – May 4, May 5 and May 20 – featuring a closer look at three of our six funded research projects, an overview of conditions that commonly co-exist with CFS, and an expert clinician’s approach to treating CFS and fibromyalgia.
- Our SolveCFS BioBank is off the ground and is attracting participation from patients and researchers alike.
- We’ve updated our XMRV resource page several times over the past month to keep up with news about research and changes to blood donation policies of three countries.
- The federal CFS Advisory Committee will meet on May 10 in Washington, D.C., with opening comments from the Assistant Secretary of Health, an update on XMRV blood safety issues and a report from the new chief of the CDC’s CFS research program.
- We will launch our 6th Annual Virtual Lobby on May 10, reaching out to Congress, health agencies and the media.
- Visual dysfunction in CFS got a lot of attention on our Facebook page this past month and we’ve shared patients’ tips along with two expert articles about these symptoms in the “You Matter” section of this Link.
- A donor family has issued a challenge pledge, promising to match donations made by May 12. Your gift will matter even more during this short campaign!
Our last news item reports that Dr. Daniel Peterson has retired as medical director of the Whittemore Peterson Institute (WPI). A national search for a physician-researcher will begin soon, according to a press release issued by WPI. I've known Dan for nearly two decades. On the outside, he appears reserved, almost shy. You don't have to know him long to understand that he is deeply passionate about his work and deeply committed to his patients and getting them the care they need and deserve. He is in good health. He is excited about the new directions research is taking. Although he no longer has a role at WPI, he continues his practice at Sierra Internal Medicine and is enthusiastically engaged in the search for better diagnostics, effective treatments and improved care for every person with CFS. We extend to him tremendous gratitude for helping launch the WPI and for all of his pioneering work over nearly three decades and we look forward to continued collaboration until we get this thing done. Rock on, Dan.
President & CEO
May 3, 2010
CFIDSLink is offered free-of-charge to anyone who requests it. Please help us continue being able to provide this service. Donate now.