From the CEO's Desk
This morning, like most mornings, I listened to National Public Radio (NPR) while I dressed for the day.
“We use our inside voices to bring you the news,” the announcer stated plainly.
Today is the last day of the local station’s on-air fundraising drive, and she was telling listeners what she thinks makes NPR different from other news outlets, encouraging a pledge to continue “calm, reasoned reporting.”
Later, I thought about her message as I was making final edits to CFIDSLink. When you hear from the CFIDS Association, we use our inside voices too. There’s plenty to provoke a variety of emotions in these tumultuous times of CFS science, policy, advocacy and activism. And the range of responses reflects the diverse perspectives and common experiences of this community. There are many, many unmet needs that warrant being addressed through different approaches taken by individuals and organizations with varied skill sets and unique strengths. It’s encouraging to see new groups starting and people getting involved – for the first time ever or the first time in a long time.
The CFIDS Association’s resources are focused on “stimulating research aimed at the early detection, objective diagnosis and effective treatment.” This is our strategy to make CFS widely understood, diagnosable, curable and preventable. In this issue of CFIDSLink , we report on recent progress made by several of our grantees in an article and webinar titled, “Expanding Research: Building on Your Investment.” We update readers on success in the first step of making CFS an eligible topic for a new source of research funds, the Department of Defense’s Congressionally Directed Medical Research Program. We include information about the upcoming meeting of the federal CFS Advisory Committee and our recent nominations to it. And we share information about other upcoming events and important publications.
Much of this news makes me want to shout from the rooftops. But like USING ALL CAPS IN WRITTEN CORRESPONDENCE, sometimes that isn’t the most effective means to communicate substantive information. So we hope you’ll hear our inside voice, directed loud and clear throughout and beyond the community, as we share the latest news.
President & CEO
The CFIDS Association of America
October 6, 2010
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