Empowerment Through Advocacy
A special advocacy session will take place at 1:00 p.m. on
Sunday, October 10, at theAACFS conference. Advocacy is more than just
influencing government - it's educating a doctor, explaining CFS to a health
reporter, convincing social service agencies to serve CFS patients, and
establishing group housing for CFS patients in need.
This 90-minute facilitated forum explores advocacy, in all its
contexts, and ways people are empowered through actions that serve a broader
purpose. In efforts great and small, our community makes progress toward a
better quality of life for all those living with ME/CFS and FMS.
Nationally and internationally, individuals, groups and
organizations work for the common good of patients. What works? What is your
greatest success? What do you need to be more effective?
The outcome of this advocacy session will be increased
understanding of others in the patient community and the exchange of ideas that
may spark collaborative efforts. How might we assist each other?
Information about the conference can be found at
http://www.aacfs.org. If you plan to attend the
patient conference and would like to participate in this special session, please
register in advance. Send a message toPat Fero, AACFS Organizing Committee
Member, with your name, organization name (if applicable), geographic area and a
brief description of the project or activity you want to share with
participants. Time will be allotted on a first-come, first-serve basis, with a
limit of one representative per group/organization to allow the greatest
Specific details will be sent to session registrants in
September. In addition, small group sessions on specific topics, scheduled
throughout the conference, will include advocacy.
Register for the session by contacting Pat Fero
[Please put “Advocacy Session” in the subject line]
Postal mail: Wisconsin CFS
Immediately following this session, Dr. David Bell, a
clinician credited with identifying CFS in his Lyndonville,
New York, community in the
mid-1980s, will join us. Dr. Bell has cared for thousands of CFS patients in the
past 20 years and has collaborated on dozens of CFS research projects. He will
provide an update on a federal committee he chairs that makes recommendations
about CFS to the Secretary for Health, Tommy Thompson (formerly the governor of