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Out and About

Traveling by air this summer or fall? To assist persons with disabilities or medical concerns, the U.S. Transportation Security Administration has developed guidelines with input from various groups. Airport screeners are trained to ensure secure and comfortable screening at all TSA checkpoints, taking into account the needs of travelers with disabilities or other medical issues. It helps to be familiar with these guidelines, including instructions for screening medications through security, at http://www.tsa.gov/public/display?theme=181

Floyd Skoot’s latest book, In the Shadow of Memory, racks up two more awards. It has received the 2004 Independent Publishers Book Award in Creative Nonfiction/Essay and the 2004 PEN Center USA Literary Award in Creative Nonfiction. Floyd and his wife Beverly Hallberg will attend a gala awards ceremony in Los Angeles in October to receive the prestigious PEN Center award. Floyd has had CFIDS for over 15 years. He frequently writes about his experience with CFIDS and the devastating neurological symptoms he battles.

 


The 7th International AACFS Conference will draw hundreds of interested researchers, clinicians, patients and advocates to Madison, Wisc., October 8-10, 2004 for the latest news about CFIDS, fibroymalgia and related disorders. The conference is being hosted by the Wisconsin CFS Association and meaningful activities are planned for patients and their loved ones that go beyond the sessions on research and patient care. Organizers are requesting donations to support a conference scholarship fund, to help defray registration, travel and lodging expenses for patients in financial need. If you’d like to help, send your contribution to: WI CFS Association, 747 Lois Dr. , Sun Prairie, Wisc., 53590, Attn: Patient Fund.

Get ready to vote!
On November 2, Americans will choose the occupant of the White House, all 435 members of the House of Representatives and about a third of the U.S. Senate. It’s both a right and responsibility to take part in the election process. If you’re not registered to vote or you’ve changed your address or name since the last election, you can use the Association’s Grassroots Action Center to ensure you won’t be turned away on Election Day. Visit https://ssl.capwiz.com/cfids/e4/nvra/?action=form&state to register or update your voter registration record. Special rules apply for North Dakota, Wyoming and New Hampshire.

AWARE Talk Radio is the nation's most widely syndicated weekly "newstalk" radio program. The station provides the public with easy-to-understand information on health and personal well-being. AWARE has recently interviewed award-winning author Laura Hillenbrand about CFIDS for a program to air in the near future. This program will reach over 8 million people through internet broadcasts and more than 600 radio stations in over 95 cities. AWARE is also heard and archived on the website hosted by the national chain pharmacy, Walgreens, at www.walgreens.com/about/community/aware.

A news release sent by the Association to local and regional newspapers through the North American Precis Syndicate (NAPS) has generated coverage in more than 360 newspapers in 33 states with combined readership of nearly 25 million. The release, titled, “Children CAN get CFS,” focused on the physical and cognitive problems kids with CFIDS experience, the high rate of misdiagnosis in children and the impact of CFIDS on education. This release generated the greatest coverage compared to three other NAPS releases addressing more general CFIDS research topics.