Senate Appropriators Recognize Research Funding Decline
108-345 - To accompany S. 2810
Sept. 15, 2004
National Institutes of Health
Chronic Fatigue Syndrome [CFS].—The Committee is disappointed
that NIH funding for CFS has basically remained flat in recent years, despite
repeated congressional requests for increases. In addition, several grants
represented to be for CFS research have limited direct relevance to CFS. The
Committee notes that the Office of Research on Women’s Health, through the
Trans-NIH Working Group for Research on Chronic Fatigue Syndrome, is working on
a request for applications [RFA] based on the findings of a June 2003 scientific
workshop on CFS. The Committee strongly urges the NIH to fund this RFA as soon
as possible. The Committee also urges the NIH to expand the involvement of
intramural researchers in the study of CFS.
Health Resources and Services
Chronic Fatigue Syndrome [CFS] patients’ most crucial need is for effective,
compassionate medical care. Through its demonstration grants program, HRSA has experience in piloting
efficient ways of delivering health care services to those with emerging illnesses. The Committee encourages
HRSA to develop model CFS clinical centers with the goal of delivering effective,
multidisciplinary clinical care to persons with CFS.
for Disease Control & Prevention (CDC):
Syndrome.—The Committee commends the
CDC for building the leading CFS program in the Nation, supporting crucial population
studies, clinical and laboratory research and education. The Committee
directs CDC to provide sufficient resources to maintain the high caliber of this
program. The Committee is very interested in CDC efforts to document the
economic impact of the illness, to identify biomarkers using genomic and proteomics
technology and to address health care providers’ inability to appropriately diagnose and treat CFS.
Further, the Committee encourages CDC to better inform the public about this condition, its severity
and magnitude and to use heightened awareness to create a registry of CFS
patients to aid research in this field.