Welcome!

For 22 years, the CFIDS Association of America has been at the leading edge of CFS research, policy and education. Through “thick and thin,” this organization has responsibly represented the needs of CFS patients and their loved ones. Inspired by the courage and passion of volunteers and fueled by gifts small and large from supporters committed to a vision of a world without CFS, the Association has adapted to new challenges and opportunities while remaining true to its roots.

We are excited to introduce a new format for our print publication, and to update its name, while preserving the tradition of the beloved CFIDS Chronicle. SolveCFS: The Chronicle of the CFIDS Association of America will be distributed three times a year to all Association supporters who make an annual gift of $35 or more. It will highlight how the Association is advancing progress in CFS research and policy and it will share global news of interest to those who are committed to our cause.

SolveCFS will supplement our monthly electronic newsletter, CFIDSLink. We recognize that even in this internet age, many people still do not have regular access to online publications, and that others find screen-based text difficult to read, retain and/or share with others. SolveCFS is created with this audience in mind, and will also extend our tradition of having a print publication to serve as a tangible touchpoint for our supporters.

We have created this page for SolveCFS readers to easily find expanded or updated information mentioned in the Fall 2009 issue, using one web address for all the story references, listed page-by-page, story-by-story. We’ll create a new page for each print issue. You can also read the entire issue online.. 

We hope that integrating our print and electronic publications will help meet the information needs of our supporters and will expand the number of people served by our publications. Thank you for your continuing support!

IN THIS ISSUE

Page 1: SolveCFS
Association Tightens Research Focus
     Link to the Association’s Research Page: http://www.cfids.org/about/acceleratecfsresearch.asp
XMRV Study Attracts Worldwide Attention
     Frequent XMRV updates and resources: http://www.cfids.org/XMRV/default.asp

Page 2: AccelerateCFS Research
Banbury meeting
     Roster of Banbury participants: http://www.cfids.org/cfidslink/2009/100703.asp
     Facebook Photo Album from Banbury:
     http://www.facebook.com/album.php?aid=123595&id=47921632107&l=b3e0973820
     Association’s policy work: http://www.cfids.org/advocacy/default.asp

Page 3: AccelerateCFS Research
Association-Funded Researchers Making Headway
     Funded investigators: http://www.cfids.org/about/acceleratecfsresearch.asp

Page 4: InnovateCFS
Xplained
     Frequent XMRV updates and resources: http://www.cfids.org/XMRV/default.asp
Interim XMRV Guidelines from National Cancer Institute (NCI)
     Q&A from the NCI: http://www.cancer.gov/newscenter/pressreleases/XMRV_QandA
     Federal XMRV Working Group: http://www.cfids.org/cfidslink/2009/120203.asp

Page 5: InnovateCFS
Looking Back, Looking Ahead
     http://www.cfids.org/cfidslink/2009/120202.asp
Testing for XMRV
     http://www.cfids.org/xmrv/testing.asp
     Frequent XMRV updates and resources:http://www.cfids.org/XMRV/default.asp

Page 6: ValidateCFS
CFS Advisory Committee Holds Timely Session
     Act Now: Support the CFSAC’s recommendations: http://www.capwiz.com/cfids/home/

Page 7: ConnectCFS
SolveCFS Campaign: www.solvecfs.org

Page 8: ConnectCFS
Board Transitions
     Board bios: http://www.cfids.org/about/board-of-directors.asp
As We Went to Press
     Federal XRMV Working Group: http://www.cfids.org/cfidslink/2009/120203.asp
     Blood safety issues: http://www.cfids.org/cfidslink/2009/120204.asp
     Ampligen: http://www.hemispherx.net/content/investor/default.asp?goto=658
     Other news: http://www.cfids.org/about/whats-new.asp
     Dec. edition of CFIDSLink: http://www.cfids.org/archives/2006-2010-cfidslink/december-2009.asp
     January edition of CFIDSLink: http://www.cfids.org/archives/2006-2010-cfidslink/january-2010.asp
     February edition of CFIDSLink: http://www.cfids.org/archives/2006-2010-cfidslink/february-2010.asp
     Sign up to receive CFIDSLink: http://visitor.constantcontact.com/email.jsp?m=1102157695492&p=oi
     Donate to the CFIDS Association of America:
     https://secure.cfids.org/PayPalDonation/tabid/100/Default.aspx
     Join us on Facebook: www.facebook.com/cfidsassn
     Join us on Twitter: http://twitter.com/PlzSolveCFS
     Visit us on YouTube: http://www.youtube.com/solvecfs

This page last updated on February 3, 2010