About Us
The CFIDS Association of America is the largest and most active charitable organization dedicated to conquering chronic fatigue syndrome (CFS), which is also known as chronic fatigue and immune dysfunction syndrome (CFIDS). Since this organization was founded in 1987, the Association has invested more than $25 million in initiatives to bring an end to the pain, disability and suffering caused by CFS.
We work toward our mission by:
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Building recognition of CFS as a serious, widespread medical disorder. The Association's results-oriented education, awareness, advocacy and public policy initiatives aim to increase understanding of this illness.
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Securing a meaningful response to CFS from the federal government. Thanks to a three-year effort led by the Association, the Social Security Administration’s landmark ruling, SSR-99-2P, was issued in May 1999, making it easier for CFS sufferers to get federal disability benefits. We also led a successful effort to restore $12.9 million in CDC research funds to the agency’s CFS research program when those funds were diverted to other CDC programs. Grassroots advocates play a crucial role in CFS public policy efforts. Get involved!
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Improving the ability of health care professionals to detect, diagnose and manage CFS. Educating medical professionals about CFS and providing them with the material they need to improve the level of care they provide to patients is a key objective. Each year we send out thousands of CFS packets to health care professionals and publish a magazine for clinicians.
The CFIDS Association has resources and educational materials for patients, family members, caregivers, support groups, the general public and health care professionals. The Association is proud to lead national efforts in CFS education, awareness, public policy and research and we grateful to those who support our vital work.
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