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CHRONIC FATIGUE SYNDROME |
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Exclusively Online* Media CoverageThis list represents original content posted to news and information web sites. Yahoo Finance announces that “The CFIDS Association of America Breaks Ground on Its 'Institute Without Walls' to Transform Chronic Fatigue Syndrome Research.” It outlines new additions to the Association’s comprehensive research initiative to advance objective diagnosis and effective treatment of CFS: five new grant awards, two new projects using resources from a central biobank and curation of a biomarker 'hit list' to guide future research. The new investments total $2 million. (2/23/12)
Adrienne Dellwo, About.com’s Fibromyalgia and Chronic Fatigue Syndrome blogger, offers resources to help cope with “Working Memory Problems in Fibromyalgia & Chronic Fatigue Syndrome.” (2/20/12) About.com’s Fibrmyalgia and Chronic Fatigue Syndrome blogger Adrienne Dellwo reports that “Bowel Parasite May Lead to Chronic Fatigue Syndrome,” the results of a study conducted by Norwegian researchers and published in the online journal “BMC Gatroenterology” that hypothesizes that a “Bowel Parasite May Lead to Chronic Fatigue Syndrome.” Researchers focused 1,262 people who were “hard hit by a waterborne outbreak of Giardia enteritis … Of those 96 people, 58 (60%) were diagnosed with ME/CFS. That's about 4.5% of the people affected by the outbreak.” (2/15/12) medicalphysicsweb publishes “Diagnosing chronic fatigue syndrome,” a report on “… a pilot study carried out in the UK and published in ‘Physiological Measurement,’ [that] has shown that a simple optical technique has the potential to identify individuals with CFS.” Researchers measured peripheral pulse sites such as the ear lobe, finger tips or toe pads of both CFS and healthy controls during a tilt table test. They “found that there were significant differences between the CFS group and the controls for combinations of pulse amplitude and timing measurements …” (2/10/12) Web site 7th Space Interactive reports on a Norwegian study published in the online journal “BMC Gastroenterology.” In “Chronic fatigue syndrome after Giardia enteritis: clinical characteristics, disability and long-term sickness absence,” researchers sought to “…describe the clinical characteristics, disability and employment loss in a case series of patients with Chronic Fatigue Syndrome (CFS) after infection [with Giardia lamblia gastroenteritis].” They reported, “In all, 1262 patients had laboratory confirmed giardiasis. At the time of referral (mean illness duration 2.7 years) 16 % reported improvement, 28 % reported no change, and 57 % reported progressive course with gradual worsening. … After giardiasis enteritis at least 5% developed clinical characteristics and functional impairment comparable to previously described post-infectious fatigue syndrome.” (2/8/12) Open Salon publishes patients talking about “Little Things That Help Sufferers Cope with ME/CFS” in an article by Llewellyn King, host of “ME/CFS Alert” on YouTube. (2/7/12) A post on About.com’s Fibromyalgia and Chronic Fatigue Syndrome pages outlines the research about “Smoking, Oxidative Stress, Fibromyalgia & Chronic Fatigue Syndrome.” Some recent studies show smoking increases FM symptoms; while the post notes that similar studies have not been done in CFS, it points out that cigarette smoke causes oxidative stress, a condition that can trigger symptoms. (2/7/12) As a follow-up to a post on About.com’s Fibromyalgia and Chronic Fatigue Syndrome pages, blogger Adrienne Dellwo explores “Antioxidants for Fibromyalgia & Chronic Fatigue Syndrome,” listing several food and supplement sources. (2/3/12) “Antioxidants for Fibromyalgia & Chronic Fatigue Syndrome” is the topic of a post on About.com’s Fibromyalgia and Chronic Fatigue Syndrome pages. Writer Adrienne Dellwo notes, “…there is solid evidence behind the benefits of antioxidants at countering oxidative stress, which can trigger illness …” and lists both foods and supplements that are rich sources of antioxidants. (2/3/12) About.com’s Fibromyalgia and Chronic Fatigue Syndrome pages include information about a new study that examines “Oxidative Stress in Chronic Fatigue Syndrome.” The study, conducted by Association-funded researcher Dikoma Shungu and his team at Weill Medical College of Cornell University in New York, “… supports the theory that chronic fatigue syndrome (ME/CFS) may be related to oxidative stress, and that oxidative stress may play a key causative role in the illness.” (2/02/12) Blog The Open Notebook posts “David Tuller untangles the research history of chronic fatigue syndrome,” a fascinating interview with the journalist about his motivation for and interest in writing the detailed article about the history of CFS and the CDC that appeared on “virology blog” in November 2011. (1/18/11) Adrienne Dellwo discusses “Changing Dietary Sensitivities With Fibromyalgia & Chronic Fatigue Syndrome” on About.com. (1/25/12) http://chronicfatigue.about.com/b/2012/01/25/changing-dietary-sensitivities-with-fibromyalgia-chronic-fatigue-syndrome.htm About.com’s Adrienne Dellwo outlines the “eReader Benefits for Fibromyalgia & Chronic Fatigue Syndrome” and offers a link to reviews of the devices for those interested in purchasing one. (1/21/12) http://chronicfatigue.about.com/b/2012/01/21/ereader-benefits-for-fibromyalgia-chronic-fatigue-syndrome.htm A post on About.com asks “Do I Have Chronic Fatigue Syndrome?” It notes, “It’s true that a lot of people are regularly or constantly tired. Have you wondered if your fatigue is actually chronic fatigue syndrome?” and directs readers to a page that describes CFS’s symptoms so they can assess for themselves the need to seek a formal diagnosis. (1/18/12) Website examiner.com posts “Chronic Fatigue Syndrome (CFS),” a short but accurate look at the illness, including a symptom list and challenges to patients, that concludes, “CFS is real.” (1/15/12) The Fibromyalgia and Chronic Fatigue Syndrome pages on About.com include a post about the use of antidepressants as treatments for the two illnesses. It notes, “Antidepressants influence the way your brain uses neurotransmitters, so they may help curb the symptoms of fibromyalgia and chronic fatigue syndrome in people who aren't depressed.” (“Why Did My Doctor Prescribe Antidepressants for Fibromyalgia?”) (1/13/12) On the heels of the FDA’s most recent ruling on the status of Ampligen for use in treating CFS, About.com’s Adrienne Dellwo says, “Ampligen for Chronic Fatigue Syndrome: Still a Possibility.” Her post offers a brief history and explanation of the drug. (1/12/12) Member of the Association’s Scientific Advisory Board and Columbia University virology professor Dr. Vincent Racaniello pens a fascinating post on Discover Magazine’s “The Crux” blog that compares and contrasts the differences and difficulties of establishing a viral connection between HIV/AIDS and CFS. He caps his brief history of both illnesses by asking, “Why have investigators failed to identify a virus behind CFS?,” noting that it’s not due to a lack of viable technology, and theorizing answers. (“A Tale of Two Viruses: Why AIDS Was Pinned to HIV, but Chronic Fatigue Remains a Mystery”) (1/12/12)
About.com’s Adrienne Dellwo lists “10 Things to STOP Doing to Yourself With Fibromyalgia & Chronic Fatigue Syndrome” in a post about managing self-expectations. Her suggestions of damaging activities to halt include overdoing it, believing others’ negative opinions and asking why you’re ill. (1/10/12) |
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