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2010 Webinar Series
The CFIDS Association of America hosts a series of seminars broadcast over the web, “webinars,” on topics of high interest to people with CFS, loved ones and health care professionals. Each of these programs features top experts and will be available to the public. The only charge to participate may be the cost of your phone call* to listen to the program. Here's a list of upcoming programs.
We make every effort to archive programs on our website for later viewing; listed below are links to the recordings of and slide presentations for past programs.
PAST PROGRAMS
Managing Orthostatic Intolerance
Speaker: Peter Rowe, M.D.
The Nuts and Bolts of Disability Insurance
Speaker: Charles McB. (“Mac”) Sasser, JD
XMRV & Blood Safety
Speaker: Louis M. Katz, MD
XMRV Update
Speakers: Vincent Racaniello, PhD and Lucinda Bateman, MD
The Association’s Accelerate Research Program: Three (More) Studies
Speaker: Suzanne D. Vernon, PhD
The SolveCFS BioBank
Speakers: Suzanne D. Vernon, PhD and Liz Horn, PhD, MBI
Treating CFS & FM: The Stepwise Approach
Speaker: Charles W. Lapp, M.D.
Chronic Pain Conditions & the Overlapping Conditions Alliance
Speakers: Kim McCleary, Mary Lou Ballweg, Terrie Cowley and Christin Veasley
CFIDS Association Research Program update: Part 2
Speaker: Dr. Suzanne D. Vernon
"Defining CFS: Diagnostic Criteria and Case Definitions"
Speaker: Dr. Leonard Jason of DePaul University
Going With the Flow – Blood Flow, That Is
Speaker: Marvin Medow, PhD, New York Medical College
Association Research Program Update
Speaker: Suzanne D. Vernon, PhD, Scientific Director
XMRV: Implications for CFS (January 2010)
Speaker: Lucinda Bateman, M.D., Fatigue Consultation Clinic
Managing Orthostatic Intolerance
Speaker: Peter Rowe, M.D.
Date: Wednesday, September 1, 2010
Recording of presentation:
http://www.youtube.com/watch?v=5iF30TVLaRE
Slides of presentation:
http://www.cfids.org/webinar/slides-090110.pdf
Clinical written material:
http://www.cfids.org/webinar/cfsinfo2010.pdf
Dr. Peter Rowe was the first person to establish a substantial overlap between OI and CFS (although not everyone with OI suffers from CFS, and not everyone with CFS experiences OI). Dr. Rowe shared with us an informative presentation that details the various forms of OI, explores the condition’s relationship to CFS and offers tips and tricks to manage Orthostatic Intolerance.
The Nuts and Bolts of Disability Insurance
Speaker: Charles McB. (“Mac”) Sasser
Date: Thursday, August 19, 2010
Recording of presentation:
http://www.youtube.com/solvecfs
Charles McB. (“Mac”) Sasser, JD, opened his tool chest to share the nuts and bolts of disability insurance. He covered the different types of insurance, including employer-provided disability insurance (governed by ERISA), private insurance for disability and Social Security disability insurance; review the SSA’s CFS ruling; and describe how to navigate the process of obtaining coverage.
XMRV & Blood Safety
Speaker: Louis M. Katz, MD
Date: August 16, 2010
Recording of the presentation: http://www.youtube.com/solvecfs#p/a/u/0/ex6iS_2RqiY
Slides of the presentation: http://www.cfids.org/webinar/081610-slides.pdf
In this webinar, Louis M. Katz, MD, a specialist in infectious diseases and a prominent figure in national blood banking organizations, provided background about blood safety issues related to xenotropic murine leukemia virus-related virus (XMRV) – a retrovirus that has been linked to chronic fatigue syndrome (CFS). Public health officials are investigating the potential threat to the nation’s blood supply posed by XMRV due to the possibility that it might be transmitted through transfusions, as are other retroviruses such as HIV and HTLV. Dr. Katz reviewed current XMRV research initiatives and will discuss investigations of the retrovirus by those working in transfusion medicine.
Louis M. Katz, MD has served as President of the Board of Directors of America’s Blood Centers, the national organization of independent, community-based blood centers that supply half of the blood components transfused in the United States. He received his medical degree from the University of Iowa College of Medicine and is board certified in internal medicine and infectious diseases. Dr. Katz is a member and chair of the Transfusion Transmitted Diseases Committee and is a member and past chairman of the FDA Blood Products Advisory Committee.
XMRV Update
Speakers: Vincent Racaniello, PhD and
Lucinda Bateman, MD
Date: July 15, 2010
Recording of the presentation:
http://www.youtube.com/solvecfs#p/a/u/0/qBfLqeGuzuo
Slides of the presentation:
http://www.cfids.org/webinar/071510-slides.pdf
During this program you heard from two experts about the latest research into the association between XMRV, a newly discovered human retrovirus, and CFS.
Vincent Racaniello, PhD, a virology professor at Columbia University and host of the popular "This Week in Virology" podcast and Virology Blog, updated us on what is known about XMRV, its association with human disease (including CFS) and how research should move forward to understand its role in CFS.
Lucinda Bateman, MD, an expert CFS physician, provided an update on the latest studies of XMRV and CFS, as well as research under way. Dr. Bateman is a clinical collaborator on a study at University of Utah led by Dr. Ila Signh, one of the co-discoverers of XMRV.
The Association’s Accelerate Research Program:
Three (More) Studies
Speaker: Suzanne D. Vernon, PhD
Date: July 8, 2010
Recording of program: http://www.cfids.org/webinar/070810.wmv
(Note: slide presentation begins around the 5 minute mark of the recording)
Slides of the program: http://www.cfids.org/webinar/slides-070810.pdf
In 2008, the CFIDS Association of America greatly expanded its research program and launched several new initiatives. Suzanne D. Vernon, PhD, scientific director of the CFIDS Association of America, described the final three of the six research projects the Association funds directly.
The three researcher's projects that Dr. Vernon described in this webinar were Dr. Kathy Light of the University of Utah, Dr. Dikoma Shungu, of Weill Medical College, Cornell University and Dr. Marvin Medow, associate professor at New York Medical College.
The SolveCFS BioBank
Speakers: Suzanne Vernon, PhD and Liz Horn, PhD, MBI
Date: June 9, 2010
Recording of program: http://www.youtube.com/solvecfs
Slides of the program: http://www.cfids.org/webinar/slides-060810.pdf
Learn more about the CFIDS Association's most recent -- and most ambitious -- research project, the SolveCFS BioBank. Association scientific director Suzanne Vernon, PhD and Liz Horn, PhD, MBI, director of the Genetic Alliance BioBank shared information and discussed the ways in which this biorepository enables patients to participate directly in cutting-edge research.
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Charles W. Lapp, M.D. |
Treating CFS & FM: The Stepwise Approach
Speaker: Charles W. Lapp, M.D.
Date: May 20, 2010
Recording of program: http://www.youtube.com/user/SolveCFS#p/a/u/1/sw5HcimeSOY
Slides from Webinar: http://www.cfids.org/webinar/stepwise-slides.pdf
Slides with notes from Dr. Charles Lapp: http://www.cfids.org/webinar/lapp-slides.pdf
In his practice at the Hunter-Hopkins Center in Charlotte, North Carolina, Dr. W. Charles Lapp utilizes the “Stepwise Approach” to caring for patients with chronic fatigue syndrome and/or fibromyalgia. The Stepwise Approach uses traditional medical therapy complemented by proven wellness techniques to restore well-being and help the sufferer to improve naturally. This is accomplished through education, proper nutrition, low level graded activity, medical management of symptoms, control of perpetuating factors and supportive therapies.
Chronic Pain Conditions & the Overlapping Conditions Alliance
Speakers: Kim McCleary, Mary Lou Ballweg, Terrie Cowley and Christin Veasley
Date: May 5, 2010
Recording of program: http://www.cfids.org/webinar/05052010.wmv
Slides of program: http://www.cfids.org/webinar/oca-slides.pdf
In this webinar organization leaders described four of the conditions that have sidelined as many as 50 million lives and cost up to $80 billion each year. The four conditions to be spotlighted are: chronic fatigue syndrome, endometriosis, temporomandibular (TMJ) disorders and vulvodynia. These four either solely affect women, or target women at least four times more often than men.
Speakers:
- CFS: Kim McCleary, President & CEO of the CFIDS Association of America
- Endometriosis: Mary Lou Ballweg, President & Executive Director of the Endometriosis Association
- TMJ: Terrie Cowley, President of the TMJ Association
- Vulvodynia: Christin Veasley, Associate Director of the National Vulvodynia Association
CFIDS Association Research Program update: Part 2
Speaker: Dr. Suzanne D. Vernon
Date: May 4, 2010
Recording of program: http://www.cfids.org/webinar/05042010.wmv
Slides of program:
http://www.cfids.org/webinar/050410-slides.pdf
In 2008, the CFIDS Association of America greatly expanded its research program and launched several new initiatives. In the second webinar dedicated to describing our accelerated research program, Suzanne D. Vernon, PhD, scientific director of the CFIDS Association of America, will describe three of the six research projects it funds directly.
The three researcher's projects that Dr. Vernon described in this webinar were
Gordon Broderick, PhD, University of Alberta, Sanjay Shukla, PhD, and Bud Mishra, PhD.
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Dr. Leonard Jason |
"Defining CFS: Diagnostic Criteria and Case Definitions"
Speaker: Dr. Leonard Jason of DePaul University
Date: April 14, 2010
Recording of program:
http://www.cfids.org/webinar/defining-cfs041410.wmv
Program slides:
http://www.cfids.org/webinar/jason-slides041410.pdf
In this presentation, Dr. Leonard A. Jason explores whether current CFS and ME/CFS case definitions and whether they adequately identify patients who have this illness. He offers the argument that better case definitions might help identify more homogenous patient groups, which could facilitate the identification of biological markers for this illness. Dr. Jason has been engaged in several of the efforts to craft meaningful definitions for CFS. He will discuss the various CFS case definitions, how they impact research and care, and how the definitions might be improved to better serve researchers, clinicians, and patients.
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Dr. Marvin Medow |
Going With the Flow – Blood Flow, That Is
Speaker: Marvin Medow, PhD, New York Medical College
Date: March 25, 2010
Recording of program: http://www.cfids.org/webinar/oi-march2010.wmv (introductory remarks did not record properly)
Program slides: http://www.cfids.org/webinar/oi-slides-32510.pdf
Dr. Medow describes his study of abnormal blood flow in patients with CFS and Orthostatic Intolerance and the techniques his team uses to measure blood flow and chemical changes that may explain many of the symptoms experienced by CFS patients. You'll learn more about orthostatic intolerance, tilt table testing, transcranial Doppler and microdialysis.
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Dr. Suzanne Vernon |
Association Research Program Update
Speaker: Suzanne D. Vernon, PhD, Scientific Director
Date: February 18, 2010
Recording of program: Windows Media Player file or on our YouTube channel
Slides: Download PowerPoint file (may take a moment to load)
This 90-minute video recording of a February 18, 2010 webinar features our scientific director, Suzanne D. Vernon, PhD. Dr. Vernon provides an overview of the six research grants currently funded by the CFIDS Association of America.
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Dr. Lucinda Bateman |
XMRV: Implications for CFS
Speaker: Lucinda Bateman, M.D., Fatigue Consultation Clinic
Date: January 15, 2010
Learn More: http://www.cfids.org/webinar/xmrv-presentation-jan2010.asp
Audio file of program: http://www.cfids.org/webinar/xmrv-jan2010.mp3
Dr. Lucinda Bateman, an internist whose practice is dedicated to the management and care of people with CFS and fibromyalgia covered the basics of research linking XMRV (a human retrovirus) and CFS. She shared some early insights into what this discovery might mean for the field and for patients, as well as her perspective on other current research efforts. Unfortunately, a technical problem occurred during the presentation that prevents us from posting an archived version. Dr. Bateman will return on July 15 to give an update on XMRV as part of our webinar series.
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If you’re not familiar with how web conferencing works, please read, “What is a Webinar?” so you know what to expect. This information provides helpful information about the technical equipment required, as well as what to do at the time of the program to join the web conference.
* If you have access to VoIP (voice over internet protocol) or a cell phone with unlimited usage (or with ample minutes in your service plan), there is no cost for audio. Please read our webinar description to learn more.
ACCESS LIST OF UPCOMING PROGRAMS
Last updated on July 15, 2010
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