What Did You Do for CFIDS
YPWCs' Efforts Brought Recognition,
Originally published in Youth Allied
By CFIDS, Summer
While some YPWCs and their advocates were in Washington
making Congress aware of CFIDS, many more were educating people in their own
communities about it. Here are a few of the Awareness Day reports we've received
from CYA members!
Jen Day, age
I was a CYA Regional
Media Coordinator. I wrote to all the regional papers, media and magazines in
hopes that they'd do a story on CFIDS, especially on YPWCs, but I had no such
luck. My sister wore a blue [CFIDS awareness] ribbon to work and had several
people ask her why she was wearing one. That was a big success because many more
people found out what the mysterious blue ribbon stood for. At least it's a few
more people that know about CFIDS that didn't before!
Rebecca Ann Duger, age
I was also a CYA
Regional Media Coordinator. For May 12, I sent out ribbons and cards with
letters to people in the U.S., state and local government. I wrote to as many
people that I could think of asking them to wear blue ribbons. I wrote to
magazines and local newspapers. A friend read my letter at his church and passed
out ribbons. And we passed out ribbons to people at our church.
The county executive wrote back and
two pictures of himself with a ribbon on and said next year he would try to help
me get more attention brought to Awareness Day by proclaiming it in this county
(and I intend to hold him to it!!).
Marci Mickelini, age
This is the third year
I have had CFIDS, but only the first year I have participated on May
I asked my pediatrician if he would
blue ribbon on May 12th. He asked if he could have one for his entire staff! I
asked my 4th grade teacher if she would wear one and she said. "Sure, I'd love
to!" Afterwards she said everyone was curious about the blue ribbon and she
thinks next year I should ask all the teachers and my classmates to wear one! I
gave blue ribbons to my relatives, and they all said they would wear them.
When I was in second grade I joined
basketball league. My dad and two of my uncles coached our team. I got sick in
January of that season and I couldn't finish the season, go to the tournament or
the banquet. I don't know who was more disappointed - me or them.
The year I was nine, again I couldn't
finish the season, but I did go to the championship game and cheer our team on
to a victory!
This season I only played in three
My dad and uncles continue to coach our team. They support me when my health has
me up or down, on and off the court.
On May 12th, 1997, my Uncle Jeff and
Uncle John and his family sent me a basketful of yellow and BLUE flowers with a
card that read "Happy CFS Day!" Imagine how lucky I felt knowing how much they
love and support me!