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On-Line Support and Contact

If you are a young person with CFIDS (YPWC) or the parent or sibling of a YPWC who would like to get in touch with other YPWCs, parents and siblings, there are several resources you may want to explore.  These links are to web sites outside of The CFIDS Association of America's Youth site.

  • The CFS-Y Discussion List is an electronic support group for young people with CFS/CFIDS.
  • CFS-P offers support to parents of children and teenagers with chronic fatigue syndrome and related conditions.
  • CFS-20s is a mailing list offering support to people with CFS in their 20s, many of whom have been ill for many years.
  • CFIDS-College provides students suffering from CFIDS a way to communicate with others in the same situation.
  • About.com's CFS Chat Room has scheduledand unscheduled chats for PWCs of various ages, including a special chat forteens with CFIDS.
  • The CaringParents Discussion List is a member of The Caring-Family Organization of Internet support services. Members of CaringParents share their concerns, questions and stories with other adults who are helping a child cope with illness. To join, send an e-mail message to listserv@maelstrom.stjohns.edu reading: Subscribe CaringParents (firstname) (lastname).
  • Fun Wishes Pen Pal Connection is a web site that matches pen pals by gender, age and interests (this is NOT a dating service and is not exclusively for young children nor is it exclusive to CFIDS patients). 
  • Sleepy Teenzzz is a CFS site designed by teenz with CFS for teenz with CFS. Offers opportunities for support.

 

Disclaimer:  The CFIDS Association of America, Inc. serves as a clearinghouse for information about chronic fatigue and immune dysfunction syndrome (CFIDS). The Association does not recommend any particular organization, and inclusion on the list above does not constitute endorsement.  The CFIDS Association of America assumes no responsibility for the practices of the organizations listed above, the content of any linked Web site or any activity undertaken by readers.