CFIDS Youth Website Index
Topics on this Website:
For
related articles, see Coping,
Family and Caregiver Issues, Support, Education, and Youth and CFIDS Awareness.
Supporting the Child with CFIDS By Jenn Waterman
I Can't Remember a Time When I Didn't Have CFIDS By Katie Fuller
CFIDS Has Been a Challenge to Me By Sharon Walk
All I Want is Understanding By Jennifer Day
Thy Silence Shall Be No More By Connie L. Howard
Changing Negatives to Positives By Jake Parsons
Growing and Learning in my First Year with CFIDS By Heather Kaplan An Olympic Athlete With CFIDS
By Christy Record
VOICE! By Heather
Frese (eight different articles about coping with CFIDS)
-
Voiceletter by Angela Fowler (Winter 1996)
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Voiceletter by Heather Frese (Spring 1996)
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Voiceletter by Vanessa Matthews (Summer 1996)
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Voiceletter by Ann McErleane (Fall 1996)
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Voiceletter by Jaime Wellman (Winter 1997)
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Voiceletter by Nichole Foster (Spring 1997)
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Voiceletter by Anna Ruddock (Summer 1997)
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Voiceletter by Casey Parker (Fall 1997)
Hard-Fought Battles and Little-Girl Dreams By Sandy Becker
Things Remembered By
Sandy E. Becker
The CFIDS Garden: 'Growing with CFIDS' By Sandy E. Becker
The CFIDS Garden: Being Happy By Sandy E. Becker
The CFIDS Garden: Who am I? The Identity Struggle By Sandy E. Becker
Four Years By Rebecca
C. Moore
Right Where I Am By
Katie Foran Kids Coping with CFIDS By
Lynn Vanderzalm The SOCK Drawer (for each Sibling Of a CFIDS Kid): Memory Island By Ben Frese
Preparing for College and Independence
By Rebecca C. Moore "They Let Me Sleep in the Van." How a CFIDS Teen Found Happiness and
Success in a New High School By Kate Anderson, M.Ed. Educating Sandy (about
taking correspondence courses) By Sandy E. Becker Back to School By Sandy
Becker The
SOCK Drawer (for each Sibling Of a CFIDS Kid): Back to School Without Your Sibling? by Katherine Moore I'm Not Dead, I'm Just Homebound By Nichole Foster Feeling Cheated at Graduation - PWCs Who Struggle Through
High School
Deserve Their Reward By June Foran The Thrill of Making it to Graduation By Connie Howard Graduation Day By Rebecca C. Moore
YPWC
Attends Graduation,
Thanks to Friends Calen's
Story by Karen Lang
CFIDS
Youth Pen-Pal Connection CFIDS Pen-Pals: My Best Friends By Ann McErleane
Pajama
Party Plus - Where
Girls Could be Girls, in Spite of CFIDS By Jennifer Rozines,
Katie Foran & Beth Warren VOICE! Making Contact By
Heather Frese VOICE! Friend or Not, By
Vanessa Matthews The
CFS-Y Prom: A Night of Enchantment and Dreams By Heather
Frese
Window
Friend By Gretchen-Ann Verbenski I Keep It All Inside By
Lara Hardinge The Life of a Person with CFIDS By Abby Gengozian
Tonight
I Lit a Candle By Nichole Foster Perspective By Chelsea
Berns The
CFS Tunnel By Diana M. Mosler
The
CYA/Voice
Dictionary (An anthology of definitions
from the VOICE column, all about the humor in life with CFIDS)
Top Ten Reasons YPWCs Look Forward to Going Back to
School By Heather Frese and Rebecca Moore Top Ten Ways for YPWCs to Celebrate Valentine's Day By Heather & Dede Frese and Katie & Rebecca Moore
Top
Ten Ways to Make
Lobby Day Even More Interesting... By Heather Frese and
Rebecca Moore Coping For related articles
see Coping
with Neurocognitive Problems, Family and Caregiver Issues, Support, and Living with CFIDS.
Pace Yourself By Ingebjorg
Midsem Dahl Energy-Saving
Tips for YPWC-Students By Staci R. Stevens, MA
HOPE:
From a YPWC By Dianna M. Banks Coping With CFIDS: A Guidebook By and For Young People
with CFIDS Compiled by Chelsea Berns, Jen Day, Lara Hardinge, Vanessa
Matthews,
Rebecca
Moore, and Vicki Walker The Coping Corner: 'Memory Aids,' 'The Stair Strategy,' and 'Have Fun!' By Sandy E. Becker VOICE! CFIDS and Nutrition
By Ann McErleane Gracefully
Declining Invitations to Social Gatherings Question answered
by Linda Miller Iger, PhD and edited by Christy Record Should I Really Drive? Some Thoughts to Ponder Before
Hitting the Streets By Connie Lynn Howard Risk and Resilience: Children and Youth with Disabilities
from the Institute for Health and Disability at the University of Minnesota
HOPE:
From
a YPWC By Dianna M. Banks The Coping Corner: 'If I Only Had a Brain!', 'Sweet Dreams. Or not.',
and 'Green Thumbs' By Jenn Waterman
The Coping Corner:
'Reach Out and Touch Someone,' 'Pillow Pals,' and 'Dream Boxes' By Jenn Waterman The Coping Corner: 'You Are What You Eat' and 'Dream Boxes' By Jenn Waterman (Spring 97) The Coping Corner: 'Test-Taking Tips,' and 'Dream Boxes' By Jenn Waterman Coping With CFIDS: A Guidebook By and For Young People
with CFIDS Compiled by Chelsea Berns, Jen Day, Lara Hardinge,
Vanessa Matthews,
Rebecca
Moore, and Vicki Walker
The SOCK Drawer (for each
Sibling Of a CFIDS Kid): Summer Fun For Two By Katherine
Moore The
Coping Corner: 'Happy Trails,' 'If You Plan It, They Will Come,' and 'A Collosal CFIDS Celebration'
By Jenn Waterman Coping With CFIDS: A Guidebook By and For Young People
with CFIDS Compiled by Chelsea Berns, Jen Day, Lara Hardinge,
Vanessa Matthews, Rebecca
Moore, and Vicki Walker
Coping With CFIDS: A Guidebook By and For Young People
with CFIDS Compiled by Chelsea Berns, Jen Day, Lara Hardinge, Vanessa
Matthews,
Rebecca
Moore, and Vicki Walker Supporting
the Child with CFIDS By Jenn Waterman
CFIDS Youth
Pen-Pal Connection
Kids
Coping with CFIDS:
Children Explain What it's Like to Live with CFIDS by
Lynn Vanderzalm The Coping Corner: 'Be Prepared,' 'Let Your Anger Out,' and 'Color Away' By Sandy E. Becker The Coping Corner: 'Take it slow,' 'Cut yourself some slack,' 'Do what
makes you happy,' and 'Eat Chinese food' By Jenn Waterman
Risk and Resilience: Children
and Youth with Disabilities from the Institute for Health and
Disability at the University of Minnesota The Desperate Moments: Suicidal Thoughts By Sharon Walk CFIDS Suicides Shock YPWCs
By Vicki L. Carpman
(features responses by Heather Frese, Sandy Becker, and Linda Miller Iger, PhD, and a poem by Nichole
Foster) The CFIDS Garden: 'Being Afraid' By Sandy E. Becker The CFIDS Garden: 'Needing Help, Getting Help' By Sandy E. Becker Psychiatric
and Psychosocial Aspects of CFIDS in Children and Adolescents
by Alan Gurwitt, MD
CFIDS Youth Pen-Pal
Connection (We have pen-pals for siblings!) The SOCK Drawer (for each Sibling Of a CFIDS Kid):
Back to School Without
Your Sibling? By Katie Moore
The SOCK
Drawer (for each Sibling
Of a CFIDS Kid): Memory Island By Ben Frese
The
SOCK Drawer (for each
Sibling Of a CFIDS Kid): Sharing My Story: A Challenge I Faced By
Tara Hardinge The SOCK Drawer (for each Sibling Of a CFIDS Kid): Summer Fun For Two
By Katherine Moore Supporting
the Child with CFIDS By Jenn Waterman
CFIDS Youth Pen-Pal Connection (We have
pen-pals for parents, too!) Supporting the Child with CFIDS By
Jenn Waterman
The
Challenges of Parenting
a Child with CFIDS By Lynn Vanderzalm
Parents'
Corner: Hands-On/Hands-Off
Parenting By Lynn Vanderzalm Parents' Corner: Gearing Up for School By Lynn Vanderzalm Parents' Corner: Attitude, the Gateway to Services By Lynn Vanderzalm Parents' Corner: Learning on the 'Road Less Taken' By Linda Sillitoe Parents' Corner: Homegrown Heroes By Lynn Vanderzalm
Parents'
Corner: What Does
It Cost You? By Cyndi Volkers Helping Hands: A Researcher and a Mother Help Others Learn to Help
YPWCs By Vicki Carpman Walker Stabilizing the Family Mobile
By Lynn Vanderzalm CFIDS and the Family - Why Have Family Meetings? By
Sharron Fishman, MA, LPC Calen's
Story by Karen Lang
Risk and Resilience: Children and Youth with Disabilities
from the Institute for Health and Disability at the University of Minnesota
Keeping
the Caregiver Afloat By Linda Miller Iger, PhD Caregivers & Care Receivers - A Difference in Perspective by the National Family Caregivers' Association
Being a PWC's Caregiver:
Stress and Satisfaction Assessments By Joseph R. Ferrari, PhD, Jennifer Braus, and Leonard A. Jason, PhD
For the Caregiver: Principles of Self-Advocacy by the National Family Caregivers' Association Home Health Care A Guide to Resources by the National Family Caregivers' Association
For related articles see Friendship and Special Times
and Coping.
Teens Overcoming CFIDS, Together Compiled by Lara Hardinge Starting a Support Group for Young Persons and Parents By Linda Reveruzzi Survey Results Show YPWCs Have Much Need for Support By Rebecca Moore and Linda Reveruzzi New Jersey Conference Spotlights YPWCs By Beth Warren Helping Hands: A Researcher and a Mother Help Others Learn to Help
YPWCs By Vicki Carpman Walker
Links
to Youth-related CFIDS
Resources Pajama Party Plus - Where Girls Could be Girls, in
Spite of CFIDS By Jennifer Rozines
Also see Education Resources on the Web links page. Tips for Teachers of Young People with CFIDS by Kate Anderson, MEd Evaluating CFIDS: A Checklist for School Nurses
by David S. Bell, MD What Schools Need to Know About CFIDS/CFS by
Michelle L. Banks, MS Ed Educating the Educators: The Special Needs of Children with CFIDS A conference report by Vicki Carpman A Useful Test Battery to Guide Programming for Children
with CFIDS by Robert Sedgwick, EdD CFIDS: Educational Rights, Responsibilities and Options by Michelle L. Banks, MS Ed Encouraging Compliance With the Law Through Legislation by Karen Lang Higher Education and Disability Law: Emerging Issues by Salome M. Heyward
Neurocognitive
Problems and the CFS Student By Linda Miller Iger, PhD
Strategies
for Learning with CFIDS By Linda Miller Iger, PhD and
Rebecca C. Moore Studying for Exams by Christy Record and Linda
Miller Iger, PhD Energy-Saving Tips for YPWC-Students By Staci R.
Stevens, MA The Coping Corner: Test-Taking Tips and Dream Boxes By Jenn Waterman
Educational
Issues: Home Schooling By Jenn Waterman
College
Correspondence
Courses: Educating Sandy By Sandy E. Becker
Preparing
for College and Independence By Rebecca C. Moore Maximizing Success: Transition Planning for Education
After High School
for Young Adults with Chronic Illnesses by Andrea Edelman
Applying
to College When
You Have CFIDS By Jean Oviatt Ten Tips for Surviving College with CFIDS By Rebecca Bailey College Disability Staffers Seek CFIDS Information By Kathryn Schwille The Road That Was Taken: Going to College as a PWC
By Regan Harris Energy-Saving Tips for YPWC-Students By Staci R.
Stevens, MA
Preparing for College and Independence By Rebecca C. Moore I'm Not Dead, I'm Just Homebound By Nichole Foster Calen's
Story by Karen Lang College Correspondence Courses: Educating Sandy By Sandy E. Becker Back to School By Sandy Becker
The SOCK
Drawer (for each
Sibling Of a CFIDS Kid): Back to School Without Your Sibling? By Katie Moore Graduation Day By Rebecca C. Moore
"They
Let Me Sleep
in the Van." How a CFIDS Teen Found Happiness and Success in a New High School By Kate Anderson, M.Ed. Feeling Cheated at Graduation - PWCs Who Struggle Through High School
Deserve Their Reward By June Foran The Thrill of Making it to Graduation By Connie Howard YPWC Attends Graduation, Thanks to Friends
Parents'
Corner:
Gearing Up for School By Lynn Vanderzalm
Parents'
Corner: Attitude,
the Gateway to Services By Lynn Vanderzalm
Calen's Story by Karen Lang
CFIDS:
Educational Rights, Responsibilities and Options by Michelle
L. Banks, MS Ed Calen's
Story by Karen Lang Encouraging Compliance With the Law Through Legislation by Karen Lang Higher Education and Disability Law: Emerging Issues by Salome M. Heyward
Bridging the Gap: Improving
Communications Between Doctors and Young Persons with CFIDS
By Sharon Walk Sleep
Disorders and CFIDS By Charles W. Lapp, MD
Neurally
Mediated Hypotension
and CFS: An Interview with Johns Hopkins University's
Dr. Peter Rowe By Rebecca Moore Physical Maneuvers For Reducing Symptoms During Upright Posture in Those
With CFS By Peter C. Rowe, MD Neurocognitive Problems and the CFS Student by Linda Miller Iger, PhD Energy Saving Tips for YPWC Students by Staci
Stevens Psychiatric
and Psychosocial Aspects of CFIDS in Children and Adolescents
by Alan Gurwitt, MD Pediatric researchers publish about CFS and FM
By Rebecca Moore Heart Rate, Blood Pressure Problems Triggered by Standing Upright In Teens
With Chronic Fatigue
Syndrome Interview
with Dr. Bryan Carter on His Study of CFIDS in Adolescents
By Rebecca C. Moore NIH Brings Scientists Together to Evaluate Research on CFIDS
in Adolescents, April
1998 by Vicki C. Walker Neurally Mediated Hypotension and CFS: An Interview with Johns Hopkins University's Dr. Peter Rowe By Rebecca Moore
Physical
Maneuvers For Reducing
Symptoms During Upright Posture in Those With CFS By Peter
C. Rowe, MD Research
on Children with CFIDS Published By David M. Hoh
NIH Brings
Scientists Together to Evaluate Research on CFIDS in Adolescents, April 1998 by Vicki C. Walker How Many Kids Have CFIDS?
By Rebecca C. Moore The Prevalence of Chronic Fatiguing Illness In Adolescents Study by James G. Dobbins, Bonnie Randall, Lea Steele, et al. Reported by Vicki
L. Carpman
CDC Announces Prevalence Rates for CFIDS in Young
People
Prevalence
Studies
Try to Count YPWCs by Frank Albrecht, PhD
Do We
Need a CFS Case Definition
for Children Under 10? By Karen Lang
CFS and
Adolescents Experts
discuss
pediatric CFIDS at AACFS conference By Karen Lang
Educating
the Educators:
The Special Needs of Children with CFIDS
A conference
report by Vicki Carpman
A
Blue Ribbon
Day (May 12, 1995) by Jaime B. Belson
Having
My Say by Sandy E. Becker Antics and Advocacy: CYA at Lobby Day 1997
What Did You Do for CFIDS Awareness Day? YPWCs' Efforts
Brought Recognition,
Satisfaction Television Tips: Raising Awareness By Alisa
Vanderzalm
Add Your Voice to Empower YPWCs
by Rebecca C. Moore Cultivating the Executive Branch
by Karen Lang
Television
Tips: Raising
Awareness by Alisa Vanderzalm Emilie Sutterlin Speaks Out for Those Who Can't by Jenn Waterman New Jersey Conference Spotlights YPWCs by Beth
Warren Supporting the
Child With CFIDS: The Rights and Needs of YPWCs by Jenn
Waterman Survey
Results Show YPWCs Have Much Need for Support by Rebecca
Moore
A
Blue Ribbon Day (May 12, 1995) by Jaime B. Belson Having My Say by Sandy E.
Becker Antics
and Advocacy: CYA at Lobby Day 1997 YPWCs Made a Difference at CFSICC Meeting
CYA Members Tell Researchers About Living With CFIDS
Youth Comment
on Attending
the
CFSICC Meeting More than 80 Letters Delivered to Dr. Lee Lee Responds to Our Letters
by Rebecca C. Moore
How
Many Kids Have CFIDS? By Rebecca C. Moore The Prevalence of Chronic Fatiguing Illness In Adolescents Study by James G. Dobbins, Bonnie Randall, Lea Steele,
et al. Reported
by Vicki L. Carpman CDC Announces Prevalence Rates for CFIDS in Young
People
Congress Learns About YPWCs' Problems at Briefings
By Vicki L. Carpman NIH Brings Scientists Together to Evaluate Research on CFIDS
in Adolescents, April
1998 by Vicki C. Walker More Research Needed on Youth With CFIDS: CFIDS Association
Makes Recommendations
to CFSCC by Vicki C. Walker
Educational Issues: Encouraging Compliance With the Law Through Legislation By Karen Lang Calen's Story by Karen Lang
CFIDS:
Educational Rights, Responsibilities and Options by Michelle
L. Banks, MS Ed Higher Education and Disability Law: Emerging Issues
by Salome M. Heyward
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