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Other Resources For Young People With
CFIDS
Many resources exist for young persons with CFIDS
(YPWCs)
and their families. Following is a list of some resources we're aware of outside
of this webpage. If you know of a resource that should be listed here, please
write to
webmaster@cfids.org.
The CFIDS Association of America claims no
responsibility for information on websites that are not part of the
Association's website. This information is provided as a public
service.
Support
Groups and Pen
Pals
-
Sleepy Teenzzz is a CFS site designed by teenz with CFS for
teenz with CFS. Offers opportunities for support.
-
The CFS-Y Discussion List
is an electronic
support group for young people with CFS/CFIDS. When you join the list you
become part of a group of young people with CFS who communicate by e-mail over
the Internet.
- CFIDS College
is a discussion list for college students
with CFIDS, providing a place to "share notes" on college life, study tips,
dealing with peers, etc.
-
CFS-20s is a mailing list offering support to people with
CFS in their 20s, many of whom have been ill for many years.
- About.com CFS Chat Room
has scheduled and unscheduled
chat's for PWCs of various ages, including a special chat for teens with CFIDS.
-
CFS-P offers support to parents of children and teenagers with chronic
fatigue syndrome and related conditions.
- The
CaringParents
Discussion List is a member of The CaringFamily Organization of Internet
support services. Members of CaringParents share their concerns, questions and
stories with other adults who are helping a child cope with
illness.
- PatchWorx is an online community for young people facing
illness and disability.
-
Fun
Wishes Pen Pal Connection is a web site that matches pen pals by gender, age and interests (this
is NOT a dating service and is not exclusively for young children nor is it
exclusive to CFIDS patients).
-
CFIDS Support
Network
- Starting a Support Group for YPWCs and Parents
Websites
of
Interest
Education
Resources
-
Action for
ME if you are affected by M.E. (Myalgic Encephalomyelitis/
Encephalopathy), CFS (Chronic Fatigue Syndrome) or PVFS (Post Viral Fatigue Syndrome)?
This site is for you.
-
Chronic Illness
Initiative
DePaul University. Students with chronic illnesses such as
chronic fatigue syndrome, lupus, fibromyalgia, among others, may take advantage of
the services of the SNL’s Chronic Illness Initiative. This program was
designed to help students who have had difficulty attending traditional
programs because of relapses or unpredictable symptom flare ups. Scholarships
are available.
-
The
Pediatric Network for Chronic Fatigue Syndrome, Fibromyalgia and Orthostatic
Intolerance has articles on medical, educational, parenting,
transition planning, and advocacy topics
- The National
Information Center for Children and Youth with Disabilities is a national information and referral center that
provides information on disabilities and disability-related issues for
families, educators and other professionals.
- Individuals with Disabilities Education
Act Homepage (IDEA),
provides information on the federal law which mandates a "free and equal
education" for children with disabilities.
-
Special Education and Rehabilitative Services
provides links to various sources that can provide assistance or needed
information.
- Transition
, has information about the
school-to-work transition.
-
The
PACER Center
expands
opportunities and enhances the quality of life of children and young adults
with disabilities and their families, based on the concept of parents helping
parents.
- HEATH Resource Center
is a national
clearinghouse on postsecondary education for individuals with disabilities.
- Office of Special Education and
Rehabilitative Services (OSERS) of the U.S. Department of Education.
- Educational Resources Information Center
(ERIC) is a
national information system with ready access to an extensive body of
education-related literature.
Books, Newsletters &
Articles
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